Ron has prostate cancer 😟

The medications are wiping him out. He’s taking Nubeqa twice a day and he got the Elegard shot yesterday morning. One of the side effects of both of them is fatigue.

There’s a big disconnect between what we were expecting and what’s actually happening. He basically hasn’t gotten out of bed except to use the bathroom and for meals. He says he’s never experienced fatigue this extreme and I’ve never seen him this inactive.

Doc says this is normal. Testosterone affects energy, muscle strength, mood, red blood cell production, and stamina. Starting the meds cause testosterone to drop abruptly.

As the meds drop his testosterone, and as his body gets used to that, the fatigue will level out, but it will be at least a couple of weeks before this extreme fatigue phase passes, leading to a less intense tiredness.

It’s hard to watch this strong, capable and active man suddenly feel frail and weak. Even though I understood intellectually that this would happen, emotionally it’s shocking. Just feels wrong. šŸ’”
 
It is a shame that we have to suffer through the side effects of medications. Once our body gets regulated to the chemicals that we have put into our body, I think we should expect some normalcy with the leveling off. Like the doctors always tell us, ā€œYou have to be patient. It takes time for the meds to level off.ā€

I, along with others will continue to check back and hope to see a path forward with Ron regaining some strength and energy. Please keep in mind that several members here are taking this trip with Ron, so we have to keep a positive attitude as we go down that road, even if it’s one step at a time.

I hope all of you have a Blessed Day.
 
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I'm now 77 I always get my lab work done prior to appointments with my primary care physician. It is my feeling that the exam is much more beneficial if the information is fresh. Upon reaching my 75th birthday I noticed that there was no PSA result in my lab results and raised that issue with the doctor. I get my healthcare at the VA and have been extremely pleased with the care I receive. However my doctor told me that is was a policy not to test PSA for men over 75, and that he would get a lecture in his management review if he ordered the test.

To say the least I was shocked. I literally asked if it was the VA's preference to let us die if there was a negative test result, and he really didn't give me an answer. I'm not one to take things passively when my health is involved. I've done two things since then. 1. I had a the PSA test done and it was paid for by my medicare and medicare supplemental insurance. There was not an issue. Relieved but not satisfied. 2. I paid a visit to the facility Director and voiced my objection to the policy.

My actions may not make a difference, but I'm a Vietnam veteran and was exposed to agent orange and noted in my medical records. Prostate cancer diagnosis is high on the list of effect experienced by individuals such as me. I will continue to object to their policy, and I will also continue to get the test performed even if I have to start paying for it without insurance coverage.
I've known a few men over the age of 75 that has been diagnosed with prostate cancer. Had they not been test for it, they'd never known until it was too late. Prostate cancer is one of many cancers that is treatable and with a good prognosis if caught early. I'm glad when you were tested for it, your PSA came back normal.
 
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