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Mike

Mike

Well-known Member
Location
London
The NHS are going to put your Medical Records into a central
database, they say that it is to improve treatment in an emergency,
but they will contain all your contact details!

To either agree or to opt out, go to https://digital.nhs.uk/services/national-data-opt-out
There is a phone number 0300-303-5678, but I am told that they
never answer it.

This may only concern people in England and Wales.

Mike.
 
Mike said:
The NHS are going to put your Medical Records into a central
database, they say that it is to improve treatment in an emergency,
but they will contain all your contact details!

To either agree or to opt out, go to https://digital.nhs.uk/services/national-data-opt-out
There is a phone number 0300-303-5678, but I am told that they
never answer it.

This may only concern people in England and Wales.

Mike.
Click to expand...
When I first heard about this a few weeks ago, my first instinct was to go and take my name off the list.

However on further research I find that if I do, I will be denying much needed equipment for the NHS . and other places..

for example, in Spain if you sign on the padron at the Ayuntemiento( town hall) . they know exactly how many people are needed to provide local supplies and infrastructure .. how many Dustbins are needed on the streets, how many pharmacists are needed in that village or town.. doctors etc...

That's the simplest way to describe what's happening with the Central Medical records here .. so I will be leaving mine on...
 
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what's happening with all of this patient data being collected and shared?

The information will be made available to academics and commercial third parties, privacy campaigners have claimed. The records will purportedly be used for research and planning, with NHS Digital claiming that records "decide what new health and care services are required in a local area, informs clinical guidance and policy, and supports researching and developing cures for serious illnesses, such as heart disease, diabetes, and cancer."


NHS Digital shares a list of who it shares its data with, which is updated each month, although campaigners say it can be extremely difficult to find out who sees the data due to the NHS' "opaque" commercial relationships. For its part, the NHS says that patient data is never used for insurance or marketing purposes, promoting or selling products or services, market research, or advertising.

Not included in the database will be patient's full addresses, any images or videos from consultations, or legally restricted data such as IVF treatment or gender reassignment. According to the NHS, personal medical records will be anonymised to keep your identity secret.

Crucially, the code to unscramble the anonymised data will be held by the NHS and will be used to reveal the identity whenever there is "a valid legal reason"

https://www.express.co.uk/life-styl...ealth-Service-Unless-You-Opt-Out-June-23-2021
 
While there's still time to opt-out of the data-sharing, which kickstarts on June 23, 2021. Ahead of the upcoming deadline, NHS Digital is making the case for its new policy, which it says will be used "for research that results in better treatments, and to save lives".

According to NHS Digital, which runs the country’s healthcare IT systems, a new centralised database is needed because the current system used by GP surgeries, known as General Practice Extraction, is over a decade old. While sensitive information, including mental and sexual health data, criminal records, full postcode and date of birth, is included in the database. NHS Digital says that anything that could be used to identify you from your records will be pseudonymised before it's uploaded from your local GP practice.

"This means that this data is replaced with unique codes so patients cannot be directly identified in the data which is shared with us. The data is also securely encrypted," NHS Digital explains.


However, the code to unscramble the anonymised data will be held by the NHS. This is different from the approach taken by some tech companies, including Apple and WhatsApp, which do not store the digital keys that could unscramble the anonymised data. That's why Apple refused to help FBI investigators who hoped to unlock an iPhone owned by one of the terrorist suspects.
 
hollydolly said:
NHS Digital says that anything that could be used to identify you from your records will be pseudonymised before it's uploaded from your local GP practice.
Click to expand...
This is contrary to the information that I got from my Doctors
Surgery, hollydolly I asked for guidance and after several hours,
the practice manager called me back and said that all information
has to be and will be included in the new database.

I am not saying that you should or should not agree to this.

Mike.
 
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Mike said:
This is contrary to the information that I got from my Doctors
Surgery, hollydolly I asked for guidance and after several hours,
the practice manager called me back and said that all information
has to be and will be included in the new database.

I am not saying that you should or should not agree to this.

Mike.
Click to expand...
Oh I don't disagree.. with you Mike..I too am only going by what I've been told and read.... I feel that nowadays we're so short of doctors.. and face to face visits because so many GP's have taken private practice or have become Locums becuase it earns them much more money, and long waiting lists due to shortage of beds in hospitals , we have difficulty most of the time getting to see a doctor or have surgery .. so I wouldn't want to let the NHS think there's even Less people needing the services by leaving my name off the database..
 
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