Fibromyalgia and chronic fatigue syndrome...

MemereG

MemereG

USA
Anyone else have either one? They usually go hand in hand. I'm one that has both, it's debilitating at times, I'm totally useless. If you have either, how do you cope? I've found that I have to let it run its course, which is usually 3-4 weeks, sometimes longer. If I try to push through, it just gets worse and lasts longer. They aren't sure what causes it, maybe an infection at one time of some sort, or something that happened to you emotionally or physically. ((Chronic fatigue and immune dysfunction syndrome (CFIDS or CFS) is a group of symptoms associated with severe, almost unrelenting fatigue. The main symptom is fatigue that results in constant and substantial reduction in your activity level. Oddly, despite their constant exhaustion, people with CFS typically find that they can't sleep. CFS's sister illness, fibromyalgia syndrome (FMS or FM), is characterized by muscle pain — sometimes all over the body, or sometimes only in specific areas. These painful areas can be transient or persistent. FM pain is caused by a shortening, or tightening of the muscles. These muscles need sleep and nutrition, among other things, in order to heal. Since CFS/FM sufferers rarely sleep well, these muscles stay knotted and painful))
 

Wow!! MemereG….I haven't been diagnosed yet....I THINK I AM TAKING AFTER MY MOM...She had fatigue from when she was in her early
30's.....It seems I am taking after Mom....
I went to my Doctor, I see him once a year....But I had to go yesterday, I was in pain (Women trouble)….He will get the results next week...I Hope..
He only gave me Cipro, cause he has to get the diagnostic result....So I'm getting older!!!! Hopefully it's not a drastic condition....
Wow Is Me!!!!
I hope you get relief....Be Well!!!
 
Yes. Fibromyalgia (post viral triggered). You are so right, you just have to ride it out and trying to push through only sets you back. Cymbalta has helped me and eating for a healthy gut microbiome has helped the fatigue, but not the pain. Nothing touches the pain ...not even the strongest oral opiates. The only thing that does is a good alcohol buzz and that's certainly not a workable solution.

I've read that while the fibromyalgia disease process won't in itself kill you, the suicide rate is high. In the middle of flares, I can certainly understand that. The pain is bone to skin like the worst of the flu, but unlike the flu which you know will run its course in a few days, you never know how long a fibro flare will last ...that's one of the worst parts to me ...the not knowing.
 
peppermint said:
Wow!! MemereG….I haven't been diagnosed yet....I THINK I AM TAKING AFTER MY MOM...She had fatigue from when she was in her early
30's.....It seems I am taking after Mom....
I went to my Doctor, I see him once a year....But I had to go yesterday, I was in pain (Women trouble)….He will get the results next week...I Hope..
He only gave me Cipro, cause he has to get the diagnostic result....So I'm getting older!!!! Hopefully it's not a drastic condition....
Wow Is Me!!!!
I hope you get relief....Be Well!!!
Click to expand...

Thanks peppermint, I hope you find relief also. The thing is, there's no test that can say you have either one, it's a matter of elimination. Years ago, because of that, they didn't even recognize either of these conditions because no test could prove it was real. They now acknowledge that it is a real thing, and many, many people suffer from it...but they don't know what to do about it because they don't know what causes it. So all you can do is let it happen and don't push yourself if you find yourself in an episode. And if your Dr. thinks your crazy, go to another one is what I was told. Some Drs. are still in the dark ages. I used to feel like I was just being lazy, very lazy, and tried to talk myself out of it, I felt guilty because I couldn't do anything, a walk from the bedroom to the bathroom exhausted me. I feel guilty no longer because this is a real thing going on. I'm wishing you well also. 🌻
 
AnnieA said:
Yes. Fibromyalgia (post viral triggered). You are so right, you just have to ride it out and trying to push through only sets you back. Cymbalta has helped me and eating for a healthy gut microbiome has helped the fatigue, but not the pain. Nothing touches the pain ...not even the strongest oral opiates. The only thing that does is a good alcohol buzz and that's certainly not a workable solution.

I've read that while the fibromyalgia disease process won't in itself kill you, the suicide rate is high. In the middle of flares, I can certainly understand that. The pain is bone to skin like the worst of the flu, but unlike the flu which you know will run its course in a few days, you never know how long a fibro flare will last ...that's one of the worst parts to me ...the not knowing.
Click to expand...
AnnieA, I'm so sorry that we share this awful condition (hugs).
 
My 14 year old grandson has been in extreme pain all over his body, including his muscles and joints, since mid August. He's seen several doctors, been to the E.R. 3 or 4 times until he was finally admitted a week and a half ago. He was seen by every kind of specialist. He was admitted because he actually was numb for about an hour from the waist down and had trouble breathing. We're waiting for two tests the hospital had to send out but he had blood work and MRIs during his 3 day hospital stay. The rheumatologist prescribed something for pain (Ibuprofen had no affect) and has ordered physical therapy for him 3 times a week. He's stressing on top of everything else because he has missed more than a month of school so his grades, of course have plummeted (he was on the honor roll). His has a constant headache, stomach also hurts so he can't even fathom trying to do schoolwork, even if we got a tutor. He says the pain is worse at night. We are at our wits end. Hoping they find out what's wrong with him so he can get the proper treatment! :cry: Could it be fibromyalgia?
 
Last edited:
AnnieA said:
Yes. Fibromyalgia (post viral triggered). You are so right, you just have to ride it out and trying to push through only sets you back. Cymbalta has helped me and eating for a healthy gut microbiome has helped the fatigue, but not the pain. Nothing touches the pain ...not even the strongest oral opiates. The only thing that does is a good alcohol buzz and that's certainly not a workable solution.

I've read that while the fibromyalgia disease process won't in itself kill you, the suicide rate is high. In the middle of flares, I can certainly understand that. The pain is bone to skin like the worst of the flu, but unlike the flu which you know will run its course in a few days, you never know how long a fibro flare will last ...that's one of the worst parts to me ...the not knowing.
Click to expand...
I was put on Cymbalta years ago for my fibro symptoms but one of the main side effects is severe diarrhea so I had to stop. I’m so glad I haven’t had a flare up in years. My heart goes out to those dealing with this on a continuous bases.
 
OneEyedDiva said:
My 14 year old grandson has been in extreme pain all over his body, including his muscles and joints, since mid August. He's seen several doctors, been to the E.R. 3 or 4 times until he was finally admitted a week and a half ago. He was seen by every kind of specialist. He was admitted because he actually was numb for about an hour from the waist down and had trouble breathing. We're waiting for two tests the hospital had to send out but he had blood work and MRIs during his 3 day hospital stay. The rheumatologist prescribed something for pain (Ibuprofen had no affect) and has ordered physical therapy for him 3 times a week. He's stressing on top of everything else because he has missed more than a month of school so his grades, of course have plummeted (he was on the honor roll). His has a constant headache, stomach also hurts so he can't even fathom trying to do schoolwork, even if we got a tutor. He says the pain is worse at night. We are at our wits end. Hoping they find out what's wrong with him so he can get the proper treatment! :cry: Could it be fibromyalgia?
Click to expand...
Could possibly be allergies. I’m sorry to read this. That must be really difficult.
Good luck to you and Merry 🎄 Christmas OneEyedDiva
 
Last edited:
I bought this for an older friend of mine years ago to help with her Fibromyalgia, she said it helped her a lot. Warning, they are big horse pills, but it doesn't come in capsules.

large_2278d03a-60dd-4966-8fdf-c65a26bd20fd.jpg
 
OneEyedDiva said:
Hoping they find out what's wrong with him so he can get the proper treatment! :cry: Could it be fibromyalgia?
Click to expand...

They'd have to check him out for lots of other things, anyway, and it is much better if they do. He needs to be thouroughly checked for everything else that is possible, and I hope they will figure it out, soon, and that it is something treatable.

Impossible for us to guess, of course, and I would think that cystic fibrosis of less common types, might be among the things to look for. But I have NO expertise.

Sorry he is going through this, and of course, you are worried for him.
 
OneEyedDiva said:
My 14 year old grandson has been in extreme pain all over his body, including his muscles and joints, since mid August. He's seen several doctors, been to the E.R. 3 or 4 times until he was finally admitted a week and a half ago. He was seen by every kind of specialist. He was admitted because he actually was numb for about an hour from the waist down and had trouble breathing. We're waiting for two tests the hospital had to send out but he had blood work and MRIs during his 3 day hospital stay. The rheumatologist prescribed something for pain (Ibuprofen had no affect) and has ordered physical therapy for him 3 times a week. He's stressing on top of everything else because he has missed more than a month of school so his grades, of course have plummeted (he was on the honor roll). His has a constant headache, stomach also hurts so he can't even fathom trying to do schoolwork, even if we got a tutor. He says the pain is worse at night. We are at our wits end. Hoping they find out what's wrong with him so he can get the proper treatment! :cry: Could it be fibromyalgia?
Click to expand...

:( Poor child! So sorry to read he's going through this. It sounds more complicated than fibromyalgia. Some of the symptoms could be anxiety associated with how much pain he's in and the mental stress of not knowing what's causing it. Prayers that his medical team can find answers, and prayers for him and for all who love him!
 
Last edited:
SeaBreeze said:
I bought this for an older friend of mine years ago to help with her Fibromyalgia, she said it helped her a lot. Warning, they are big horse pills, but it doesn't come in capsules.

large_2278d03a-60dd-4966-8fdf-c65a26bd20fd.jpg
Click to expand...


I've recently added this to my other supplements after you mentioned it in another thread. So far no change, but it's only been a month or so and I usually give a new thing at least three months.
 
AnnieA said:
:( Poor child! So sorry to read he's going through this. It sounds more complicated than fibromyalgia. Some of the symptoms could be anxiety associated with how much pain he's in and the mental stress of not knowing what's causing it. Prayers that his medical team can find answers, and prayers for him and for all who love him!
Click to expand...
Thank you so much Annie. The rheumatologist did tell him that stress could be exacerbating the problem and explained that perhaps psychological counseling could help him manage that stress with stress reducing techniques (not that she thinks he's "crazy"). She also suggested that endorphins produced when he exercises, act to inhibit pain receptors thus could help lessen the pain.

You mention the suicides of those with Fibromyalgia. I've been praying my grandson doesn't feel so hopeless that he thinks that's his only option. Truthfully, I can't fully imagine how terrible this is for him. My DIL (not his mother) and her twin have it and sounds to me like his symptoms are way worse than hers. She can go to work most days. I pray for relief for all of them...I'll add you to those prayers. Thank you again for your concern.
 
Last edited:
@OneEyedDiva You mentioned that your grandson's pain started in mid August and that time-frame has been preying on my mind. Did he by any chance get back to school vaccine boosters or the HPV vaccine shortly before symptoms onset?
 
Some statins cause extreme muscle pain; some do not. My DIL had to stop Lipitor and is taking something else now.

I've also heard about magnesium helping to minimize muscle pain. Magnesium can be absorbed by soaking your feet in an Epsom salt bath. There are also more expensive magnesium foot baths and sprays for the soles of one's feet.

This does tend to make the feet a little itchy, but people have told me they feel the benefits.
 

You must log in or register to reply here.

Back
Top