End of my road

As of today I just finished 14 days without any artificial sweeteners. Diet sodas, Splenda, etc. So, whatever the problem is. it is not that.

Question: Is it possible for someone to suddenly develop a gluten sensitivity after 66 years without a problem ?

PS: the supplements that posters have recommended are on their way from Amazon.
 

Question: Is it possible for someone to suddenly develop a gluten sensitivity after 66 years without a problem ?
I'm no expert but I think so. One thing I found when I self-tested for food sensitivities was that I seemed sensitive to a bunch of things that I later didn't seem to be sensitive to after I had eliminated what seems to have been the main problems for me-- MSG and high fructose corn syrup. I suspect that once you start having inflammation (or whatever you call the response to food sensitivities), then you become super-sensitive such that things that wouldn't normally be a problem are a problem. That said, what I am getting at is IMO food sensitivities are dynamic and they can change for one reason or another.
 
Dpwspringer, You've got some excellent ideas there. That bit about the inflammation makes a lot of sense.
 

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Has your doctor checked for parasites? Have you been out of the country or in a warm water lake ?


Or, there may be something in your regular diet that is affecting you.

For example, greener underripe bananas help prevent diarrhea while ripe and overripe bananas help prevent constipation.

Some people keep a food diary to help them figure out which food might be negatively affecting them.


Sometimes instead of eating one large meal, breaking it up into spaced out smaller meals helps.


Eating more soluble fiber [which absorbs water during digestion] and reducing insoluble fiber might help

https://ibstreatmentcenter.com/ibs/why-traditional-treatments-dont-work/fiber

https://www.everydayhealth.com/ibs/soluble-vs-insoluble-fiber-for-ibs.aspx


Yogurt [or other probiotics] helps replace friendly bacteria [who aid digestion] into your digestive system.
This is especially important if you are taking medication that might be destroying the friendly bacteria.


Following a low FODMAP diet helps some people who have IBS-D [Irritable Bowel Syndrome with Diarrhea.]

https://www.healthline.com/nutrition/fodmaps-101

https://www.webmd.com/ibs/guide/what-is-fodmap


Here's a larger list [sometimes lists will vary and what affects one person might not affect another]

https://www.ibsdiets.org/fodmap-diet/fodmap-food-list/


Smiling Jane mentioned coconut cookies. Coconut helps by absorbing water during digestion.
Aldi also sells a good-tasting coconut cookie.
 
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I can identify with Traveler...

I first began to have a problem similar to IBS-D about two years before I retired.
Mornings were the worst. Many times I had problems getting to work on time.
I thought it might be related to stress [working single mom of a disabled child.]

After I retired, the problem went away for many years. After my son's sudden
unexpected death during a seizure, the problem reappeared [again appearing
to be stress-related.]

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I've had tests, tests, and more tests. All negative.
Problem started when I returned to the states. I had been living in the Philippines for 7 years, where I had a case of Heliobacter Pylori. Several G.I. doctors, since then, have claimed that I have no abnormal bacteria in my gut. I have given up on doctors. They don't know the 1st thing about foods which may cause problems.
 
Traveler, have you been diagnosed with anemia, or pernicious anemia? Take B-12 shots?

Oh, Sweetie. There are so many things that the doctors have NOT done. I am so incredibly frustrated with the whole lot of them. Short of grabbing a doctor, and shaking him, I don't know what else I can do.
I tried, at the suggestion of a friend, to get what she called a "patient advocate". I went to the social worker dept at my clinic and she told me there was nothing she could do to help me. She said she never heard of a patient advocate. I have lost my will to fight it any longer.
 
[h=1]Clostridium Difficile, get checked for it, specifically. A fecal transplant, from someone who is healthy, can cure it, overnight. Do your own research. Good luck![/h]
 
Oh, Sweetie. There are so many things that the doctors have NOT done. I am so incredibly frustrated with the whole lot of them. Short of grabbing a doctor, and shaking him, I don't know what else I can do....
The reason I asked is there is some evidence that Vitamin B-12 deficiency can be a result of H pylori infection.

"Pernicious anemia and food B-12 malabsorption share several similarities, namely, an increasing prevalence with age, an association with types of chronic gastritis, and most recently, a link to Helicobacter pylori infection."

Someone should have done a blood test along the way. Adequate B-12 blood levels would probably rule that out. Just a thought. [I went 'round and 'round with doctors concerning my father and B-12 deficiency years ago.]

Don't give up, Traveler. :rose:

https://pernicious-anaemia-society.org/b12deficiencyandperniciousanaemia/ (Note: Atrophic Gastritis)
https://jamanetwork.com/journals/jamainternalmedicine/article-abstract/485298?redirect=true (very technical :p)
 
I would think that there must be some doctor, somewhere in America, who can diagnose my problem. The ones I have been seeing don't REALLY care. I am so tired of literally begging for help. Yes, literally. The last time I saw my PCP, I grabbed his arm and said, "Please, I am begging you to help me." I get the feeling that they don't care about an old man.
There comes a time in everyone's life when it is not worth continuing the fight. I am close to that point.
 
I would think that there must be some doctor, somewhere in America, who can diagnose my problem. The ones I have been seeing don't REALLY care. I am so tired of literally begging for help. Yes, literally. The last time I saw my PCP, I grabbed his arm and said, "Please, I am begging you to help me." I get the feeling that they don't care about an old man.
There comes a time in everyone's life when it is not worth continuing the fight. I am close to that point.


I AM NOT defending the docs really....but IMO the pay system for them has taken the ability too care away. The care they give is so structured by the HMO's & such, that they can only do what is allowable by the guide lines they must follow. I have said it before, the days of Dr Welby are gone, long gone. Look how seldom we see a doc with "his" shingle hung out. Most of them are affiliated with some hospital group / university / group practice. They really are no longer in "private practice" , they have become employees .

As such, you're right,...they don't care.

I believe that is why some / many, patients are seeking alternative care , alternative methods .

I have no words of wisdom, or advise to offer. I can only say I truly wish you good luck with it all, and encourage you to hang in there .
 
Get off the 'processed' - sugar induced food merry-go-round. Eat more complex carbs & fiber. Daily BEANS!, sweet potatoes, oatmeal, buttered unsalted air popped popcorn were my salvation. Get more natural sunlight & exercise (walking is mine). Worked for me.
 
Question: Is it possible for someone to suddenly develop a gluten sensitivity after 66 years without a problem ?

Yes, I've read that people can become gluten sensitive or develop conditions like Celiac disease (which is related to gluten) in their senior years.

I have given up on doctors. They don't know the 1st thing about foods which may cause problems.

Traveler, please hang in there and never give up. I understand that you found no help from regular doctors, but that's when you start to seek alternative remedies on your own, whether it's supplements or adjusting your daily nutrition sources. I'm not an expert by far, but had had some good results taking supplements for years now. I don't know if you actually have a gluten sensitivity or not, but I've read that people do feel better when eliminating it from their diets. Here's a list of foods that may be helpful for you to figure this all out and possibly begin the healing so you can enjoy your life again. Good luck, you have lots of support here.

List of gluten rich foods HERE.

Gluten-Free foods HERE.
 
I will absolutely discuss it with my doctors. In the end, however, they have control of what tests are done. I have very little input.

I believe, as long as it does not involve a drug...you can request a test at a lab...paid out of pocket. Some [of] the test aren't ridiculous in cost. I have heard as well that the cost is usually less when the lab knows the patient is paying ?

A neighbor has [no] health insurance , he's not rich and has paid out of pocket for many of them. If it is VA related, then he catches a break.
 
Traveler, are you taking a good probiotic? If not, please try that.

Also, sweeteners called "sugar alcohols" -- names that end in "-itol," like sorbitol, xylitol, etc., can cause something like what you are experiencing. They did with me. They are frequently found in so-called "healthy" foods in health food stores and are touted as less problematic than ordinary non-sugar sweeteners. They are not. I was getting sorbitol in sugar-free gum I was chewing, and it really wreaked havoc on my GI tract.

Also, when I was younger, I had a spell of almost exactly what you are experiencing, except that mine was coupled with nausea. I was finally diagnosed with what they called back then "spastic colon" which meant that instead of normal peristaltic action of the intestine to pass food along, my colon was going into a spasm every time I would try to eat, so the minute the food hit my stomach I'd have a violent reaction.

They gave me a drug to slow down the colon and stop the spasms. It worked wonderfully -- it was called librax, and there was another one whose name I cannot recall for nausea. Anyway, turns out most of it was caused by stress (and of course the affliction itself causes a tremendous amount of stress). Eventually I was able to be OK without the medicine, though I still have occasional flareups. You should ask your doctor about this drug, if you haven't tried it already.
 
Traveler, are you taking a good probiotic? If not, please try that.

Also, sweeteners called "sugar alcohols" -- names that end in "-itol," like sorbitol, xylitol, etc., can cause something like what you are experiencing. They did with me. They are frequently found in so-called "healthy" foods in health food stores and are touted as less problematic than ordinary non-sugar sweeteners. They are not. I was getting sorbitol in sugar-free gum I was chewing, and it really wreaked havoc on my GI tract.

Also, when I was younger, I had a spell of almost exactly what you are experiencing, except that mine was coupled with nausea. I was finally diagnosed with what they called back then "spastic colon" which meant that instead of normal peristaltic action of the intestine to pass food along, my colon was going into a spasm every time I would try to eat, so the minute the food hit my stomach I'd have a violent reaction.

They gave me a drug to slow down the colon and stop the spasms. It worked wonderfully -- it was called librax, and there was another one whose name I cannot recall for nausea. Anyway, turns out most of it was caused by stress (and of course the affliction itself causes a tremendous amount of stress). Eventually I was able to be OK without the medicine, though I still have occasional flareups. You should ask your doctor about this drug, if you haven't tried it already.

Interesting. Your post made me recall that my ex-FIL also suffered with spastic colon. He had to take meds and was on a very restricted diet.

Traveler, don't you dare give up on trying to get this resolved!! Start with a very bland whole foods diet and plenty of clear liquids and if that helps, slowly branch out to other "test foods." Start taking a high-quality probiotic and let's fix this thing!
 
Yes, I was taking a good probiotic that I got from Amazon called "Wellness Series", 100 billion CFU/capsule. I took it for about a month but it had no effect at all.

What ever the problem is, it is like looking for a needle in a haystack ---- blindfolded. If a G.I. Dr could come up with a name for this illness, I could zero in on it. As it stands right now, all the doctors have been able to do is rule out certain things.

Ruled out: no cancer, no parasites, no C. Diff, no H. Pylori, no bacterial over-growth.

Absolutely causes a violent reaction: coleslaw, French onion chip dip, New England clam chowder.

Occasionally HELPS: home-made apple sauce, pasta (but not always).

For 2 weeks I gave up artificial sweeteners. No change.

Right now, it is as if my stomach is communicating with my bowels. I eat a decent meal and within an hour, I have an emergency.

My PCP once told me I was very low on B vitamins. I took a Rx Multi-B for a month. No change.
 
Yes, I was taking a good probiotic that I got from Amazon called "Wellness Series", 100 billion CFU/capsule. I took it for about a month but it had no effect at all.

What ever the problem is, it is like looking for a needle in a haystack ---- blindfolded. If a G.I. Dr could come up with a name for this illness, I could zero in on it. As it stands right now, all the doctors have been able to do is rule out certain things.

Ruled out: no cancer, no parasites, no C. Diff, no H. Pylori, no bacterial over-growth.

Absolutely causes a violent reaction: coleslaw, French onion chip dip, New England clam chowder.

Occasionally HELPS: home-made apple sauce, pasta (but not always).

For 2 weeks I gave up artificial sweeteners. No change.

Right now, it is as if my stomach is communicating with my bowels. I eat a decent meal and within an hour, I have an emergency.

My PCP once told me I was very low on B vitamins. I took a Rx Multi-B for a month. No change.

Please ask your doctor if that librax might help you. It was a lifesaver for me. It is worth a try. I googled it and it is still in use.
 


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