30 years ago I often listened to a mid-afternoon call-in medical radio show when I'd pick up my kids from school. Can't recall the hosting doctor's name, but I learned a lot from him.
When callers expressed deep frustration with doctors being unable to pinpoint a diagnosis, or anger with the medical and pharmaceutical entities for not having a cure or good treatment for their condition, he'd gently start with, "Let's remember, it's not the doctor's fault you're sick."
That show taught me invaluable information, including that there are numerous health conditions that express unusually in some people, or occur so rarely that many doctors may have never come across them.
Having a weird, rare medical anomaly myself, I know whereof I speak. I eventually discovered what was going on via Reddit when (probably my hundredth) symptom search pointed me to a thread of fellow sufferers. It described precisely what I was going through and gave me the name of the condition.
From that and further research, I learned the most effective "treatment" was to avoid whatever triggered it one's own body. Which I've mostly done successfully.
If I were still in the dark about it now, I'd feed my symptoms and info to ChatGPT (anonymously, of course). AI is a pretty good tool for narrowing down medical mysteries.