How do I refuse an invitation due to my wife's difficulties?

I would be honest to the point of saying "we're just not up to this kind of event any longer." That's honest... if your wife doesn't want people to know the specifics of *why* at this point, then her wishes should be honored. Sure they'll find out at some point, but if you override her wishes when so much of her world is probably falling apart, it would make her feel awful.
 

My "step grandson" is getting married next month and it is a "high end" formal affair. I am not close to him at all, but there is no problem involved. Over the years I have gone out of my way to treat him equally with the other grandkids, although to be honest I rarely see any of them.

The thing is, my Wife has beginning dementia and being in a crowded event would be very difficult (for me too), and frankly we would be very much out of place. And so far, we have kept my Wife's situation a secret.

While I can easily RSVP (VIA QR CODE !!!) that we won't be there, I will need to give my son a heads up. Of course, his first thoughts are that we are mad at them, anti-social, and other negatives. While I believe he would understand if I told him of my Wife's situation, I suspect it would soon no longer be a secret. This would really hurt my Wife and I can't have that happen.

At this point I'm thinking I'll just tell my son we can't make it, and give no real explanation as to why.

Oh, of course I'll send a card and $$$ gift equal to what I'd give the other grandkids.

But because I'm writing this, its obvious that I have some doubts about this. And while it would be nice if I could discuss the problem with my Wife, it would only upset her - and that is something I won't willingly do.

Your thoughts ???
I think you should tell your own children about your wife’s condition and here’s why:

What if YOU die today?

With a horrible accident, any of us could die today. So it is the responsible thing to let HER children know about THEIR mom.

I think you need to put your son in the loop here. It’s OK not to go to the wedding and you don’t have to tell the step-grandson why other than maybe, “The travel is really hard on us” (unless you just got back from a 4-week cruise). But a nice card and a check or gift card is fine. (However, even gift cards are being stolen in the mail, so maybe an e-gift card is better?)

But you must be honest with HER children. Because if you have a stroke today, they will be mighty pissed at both of you for keeping these silly secrets.
 
Thank you all for your wonderful and thoughtful comments. I will take from them and "bite the bullet" this morning, sending in the negative RSVP and letting my son know we can't make it.

One thing I need to repeat is my Wife does not choose to share her condition with anyone, including her self absorbed daughter. If you were with my Wife for an hour or so, talking of weather and such, you would swear she is really with it. But if you spent a couple hours with her or more, it would hit you that something is amiss.

I'm experienced (sadly) with her situation thru my Mother and Uncle and her Mother, so I handle it fairly well. But others can be pretty insensitive - correcting and arguing to the end. I've certainly seen that behaviour and will not let my Wife suffer from that.

May I take this opportunity to thank you all for everything. I joined this forum to be able to help, get help, and share, and you all have allowed that to happen. Thank you!

Wish me luck - and I will update the results.
I think family burdens should be SHARED.

What the heck if the point of having a family if it’s not to share life’s burdens? If you’re living in a cartel, then I suppose lots of secrets is the norm. But only the sick families keep secrets. Ask any MFCC and that's what they will say.

However, if by “family" you mean mafioso, then that's a sick family with a ton of secrets.
 

Thank you! As hard as it was, I am thankful I had the years of helping caregive my inlaws and my Mom/Uncle. I read a lot of the do's and don'ts and they have been a huge help these days.
 
I can handle that, my Wife cannot - and I will respect that.
And I respect you for respecting that. It's not like the family is going to be able to fix anything by knowing sooner. Her doctor, her caregivers and you are the only ones who have to know right away. As for the unlikely disaster of something happening to you, well, the family would all know your wife's condition before the day was over.

RSVPs by computer now, Huh? I'd never be able to get that done. Sending back that little card was so easy, and it was conveniently very small, so that lengthy explanations were impossible and all you needed to do was just check "regrets."

The busy wedding planner just wants to know numbers and probably won't stop to speculate over the regrets.
 
While I can easily RSVP (VIA QR CODE !!!) that we won't be there, I will need to give my son a heads up. Of course, his first thoughts are that we are mad at them, anti-social, and other negatives.
Why? A good relationship with your son should include being able to tell him you won't attend & you will explain at some time in the future. Depending on the progression your son will understand.
Or you could tell your son why & ask him not to let anyone else know & depend on your relationship with him to keep the "secret" .
I do know from personal experience with caring for my mother in law as this progresses it will be difficult at times emotionally.
 
Here is my response to my son..........................

Good Morning,

Coincidently, I was going to write you this morning, for yesterday morning I went to the RSVP website and it wouldn't allow me access. I tried William Anderson, william anderson, Mr and Mrs William Anderson, etc. I saw the QR code, but I don't do QR codes as I write from the PC. Please let Phillip (grandson) know I gave it my best shot.

Anyway, from the website it looks like its gonna be a pretty big, fancy affair. But unfortunately we will not be attending due to ongoing health issues. I do hope you and Phillip understand.

None of my business question... is this all the bride's parents show, or yours, or Phillips? In any case, it should be a wonderful time for all.

Phillip's always been a good guy, and we wish them the very, very best!

Of course we will send a nice card/gift, and is his/her/their address 1xxxx7 Tea Leaf Drive in Tomball, or ?

Love

Dad
Beautifully done!
 
Here’s the problem with “respecting your wife’s wishes” over your kids’ need to know. Symptoms of dementia:

Cognitive changes

  • Memory loss, which is usually noticed by someone else.
  • Problems communicating or finding words.
  • Trouble with visual and spatial abilities, such as getting lost while driving.
  • Problems with reasoning or problem-solving.
  • Trouble performing complex tasks.
  • Trouble with planning and organizing.
  • Poor coordination and control of movements.
  • Confusion and disorientation.

Psychological changes

  • Personality changes.
  • Depression.
  • Anxiety.
  • Agitation.
  • Inappropriate behavior.
  • Being suspicious, known as paranoia.
  • Seeing things that aren't there, known as hallucinations.
From: Dementia - Symptoms and causes
****************
So, you’ve got this person your love dearly and she is saying, “Don’t tell anyone.” Could that be paranoia?

Anxiety can also lead people not to tell others stuff because they are trying to control all situations so they will feel less anxious. That’s not 100% of the time, but anxiety can lead to poor decisions and either over-sharing or under-sharing.

Reasoning and problem solving - Holy Cow, don’t even mention you’re going to die to her one day because she might see that as completely unreasonable of you! But should YOU be leaving ALL these choices on sharing vs. not sharing important info with your kids UP TO HER ALONE at this stage? When her reasoning and problem solving skills are compromised by a disease, should you be leaving this choice 100% up to her?

I don’t even see that as a responsible choice. Sorry.

Assuming you are still capable of reasoning and problem solving sir, what is your plan for how and when to tell the kids?

God forbid you die before her and you have not given any of the kids a Medical POA for her, which she has to sign, but you need to get that signature while she is still COGENT and LUCID.


As I mentioned before, prior to my surgery I finally gave one of my kids my Medical POA. Just in case. Just in case something went terribly wrong and I was unable to speak or reason.

This has given me great peace of mind because you know what? Accidents happen. We ALL need to tell our younger, coherent, and Lord willing intelligent kids all of our relevant health problems.

Because if you die before her Mobileman, you’re leaving those kids with a heck of a mess and THAT. IS. CRUEL.
 
I appreciate the concern VB, and assure you that I have it covered - legally, financially, and "letters of instructions" and day to day information to my youngest son and a very close friend. I am very much aware of the situation and have done all that can be done at this early stage.

My Wife is usually in a "normal" frame of mind and is aware of all this. Please understand, this is the very early stages and it may not even develop further. The only reason we are seriously concerned is that her Mother had vascular dementia and had a series of strokes that ended up killing her. My Wife's father was an uncaring jerk who refused to get his wife the preventative medical care she needed. It wasn't til my Wife and I jumped in that she began getting the proper care. My Wife has been and is much more fortunate in the regard. Physically, we are both in very good health, and see a plethora of Doctors regularly to keep it that way.

Mobilman44 - with no "E"
 
I appreciate the concern VB, and assure you that I have it covered - legally, financially, and "letters of instructions" and day to day information to my youngest son and a very close friend. I am very much aware of the situation and have done all that can be done at this early stage.

My Wife is usually in a "normal" frame of mind and is aware of all this. Please understand, this is the very early stages and it may not even develop further. The only reason we are seriously concerned is that her Mother had vascular dementia and had a series of strokes that ended up killing her. My Wife's father was an uncaring jerk who refused to get his wife the preventative medical care she needed. It wasn't til my Wife and I jumped in that she began getting the proper care. My Wife has been and is much more fortunate in the regard. Physically, we are both in very good health, and see a plethora of Doctors regularly to keep it that way.

Mobilman44 - with no "E"
I'm so sorry about your wife’s mom.

It is horrible to observe a family member abuse or neglect another family member. It’s the complete opposite of how it’s supposed to be.

I’m not telling you what to do, but if you read any scientific research on the Vegan Diet, more studies are showing that a no meat diet like that, or at least a no Red Meat diet, can actually help clear out the arteries of plaque. Takes a long time, years, but the latest study of Vegan Diets and Alzheimers are showing that going Vegan helps with delaying Alzheimer's and similar studies of pointed out the same with cardiovascular health. (I posted that on the Health thread a while back - CNN’s Dr. Gupta featured the latest research on the CNN website.)

To put it in simple terms, basically meats and animal products allow the plaque to build up in the arteries. If you get rid of all the meats and dairy products, (and some say get rid of all oils too, but there’s a big debate about that since some oils, like olive oil and fish oil have so many benefits), then it lets your arteries clear up over time - not months, but years.

Having learned this, I gave up red meat in 2012 because I saw what my mother went through with heart disease and I sure do not want any of that.

I have backslid. Once every 6 months or so I will have something with cheese, like a pizza. And similarly, I do eat chicken about 2-3 times a week. But no bacon, no ham, no steaks, and nothing but plant milks. I will also have non-fat yogurt because it’s so good for the digestive tract.

The reason I get so apoplectic about planning for illness and death and not keeping secrets in families is because the stuff I went through in my birth family made me see just how horrible things can be when families
1. Keep secrets that should not be secrets
2. Fail to bother to get medical and psychiatric care (even when it’s free, which makes me crazy!)
3. And then keep more secrets and hold onto more delusions because they are so far gone in the habit of denial that they have lost touch with all reality and sanity.

Therefore, with my own family, I do not keep secrets with my kids. Not about money or my health or even my friends. When people start saying here they are “keeping secrets from their family” every red flag and alarm goes off in my brain and all I can do is shout, “DANGER, Will Robinson!"

But I still think your optimism is misplaced. I think you should simply assume the worst with her and GET AHEAD of the problem.

It's like living in an earthquake or high fire danger area. Everyone tells residents, repeatedly, to be prepared for disaster.

Have your go-bag. But you and your wife are staying the in denial tropes: “It's not that bad yet.” That’s denial.

Much more realistic is to think through every worst-case-scenario (which is why I asked you “What is your plan for telling the kids?”), and make your legal, medical, and mental GO BAGS now for those circumstances.

I will not weigh-in on this topic anymore. If it all becomes a s**t-show, I have warned you it can be. That’s all I can do is warn.
 
Thank you for your concern and interest. For the most part, you are preaching to the choir. Neither of us have been sitting on our butts about this - or putting our heads in the sand - since her Mother passed 10 years ago. As I said earlier, legal (including pre - arranged funerals), financial, and medical are all taken care of.
 
Tell your son. My brother's wife had bone cancer and would not allow him to even tell her parents. When she was on her death bed, that is when her parents found out. It is not fair to the caretaker to have the burden of an ill person's secret.

My brother had to take care of her and yet hide her illness. He was formerly an oncologist so no stranger to cancer. But the effort of keeping this secret took a toll on him as well. Secrets always come out and sometimes at the most dire of times.

Sometimes the ill person is mentally not themselves, whether suffering with cancer or with dementia. We as caretakers have to take care of ourselves as well. Imagine not being able to tell anyone, anyone, that your family member is suffering a disease. You need to be able to talk to people about this to give yourself some relief.
 
Last edited:
LoveTulips, I totally agree with you. Thankfully, we are nowhere near that stage, and even though we expect the problem to get worse, it's on a very slow track.

Quite honestly, if my Wife's Mother hadn't suffered from Vascular Dementia, my Wife's memory difficulties - which come and go - would be considered "old age".
 

Back
Top