I am really tired.

Murrmurr said:
You should ask if your husband's medical insurance will pay for a home-health aid to take over for a couple of hours once or twice a week.

I think Medicare still covers 80 hours a year.
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I appreciate the suggestion. We’re not there yet. He’s able to be by himself for periods of time, he mostly just sleeps anyway.

I’m still working so I prep food for him before I leave to make it easier on him to feed himself. I’m not concerned about him being alone, not yet anyway.
MarciKS said:
It is totally understandable. Caregivers need care too. Many times it is suggested that a caregiver take a day off to take care of their own mental and physical well being. Is there someone who could sit with Ron for a day while you got away, took a nap, and just spent some time alone decompressing? Just for that day? It sounds like burnout. Sometimes in order to remain strong for your loved one you hafta take a day for you.
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You’re sweet to suggest that, but I do go to work every day so that’s a change of scenery and a bit of away time for me. I love what I do, so work isn’t a chore.

But yes, burnout! Definitely feeling that acutely, at times. Feel like I’ve hit the wall physically, emotionally, mentally. I just want to turn off my phone and curl up in bed in the dark. Those are the times I KNOW it’s time to find some space, take time for myself and do things for a couple hours that are far removed from what I’m dealing with at home.

That keeps me on an even keel, at least temporarily, till it happens again, then rinse and repeat. I’m looking forward to taking some time that’s longer than a couple hours here and there.
 
I’m sorry for what you are going through. I have no other words of wisdom that hasn’t already been said.
I wish you well and that these things work out for you and your family.
Taking care of yourself is a good start.
 
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