I don't come here to cry but...

I am here gang and I apologize for causing a fuss. Maybe things will improve soon, I hope so. I am ok though and I'll hang in....
 

I'm glad you're feeling better today Jim, we don't want anything to happen to you. Hope you keep your spirits up. :peach:
 
AZ Jim said:
I am here gang and I apologize for causing a fuss. Maybe things will improve soon, I hope so. I am ok though and I'll hang in....
Click to expand...
Yes Jim hang in there and find ways of moving around with your new companion..
 

rgp said:
What sort of stem cell treatment? If I may ask ?
Click to expand...

2 1/2 years ago,she traveled to Arizona for experimental stem cell treatments,but,although 6 months afterwards she felt the treatments were helping,she now doesn`t feel there has been any significant improvement. My sister`s case seems to be a bit complicated (unusual? I don`t really know),in that some doctors say that her heart is involved and others say that her heart is fine.
 
treeguy64 said:
$14 G's a month!? What's her quality of life? It better be exceptionally excellent, for that obscene amount of money!
Click to expand...

This is an experimental drug and yes,it is ridiculously expensive. Insurance covers a bit of the cost,but not much. My family are no strangers to the ridiculous cost of some of these drugs. My niece was on a drug a few years back that had a 14,000 co-pay yearly. It kept her rare cancer at bay but one year she was simply not able to come up with the copay,was feeling well,and so didn`t bother with the med. By the end of the year,she started having symptoms again,and with the help of her church and her family,she was able to pay the copay and continue back on the med. It was too late though,she passed away in August of that year. The drug was Gleevec,and specifically used for this type of rare cancer-hence the outrageous price.

As to the second part of your question...as I`m sure Jim will agree,if there is something that enables you to breathe,and you can afford to pay for it,you will probably happily shell out the $$$$. Sad,isn`t it?
 
AZ Jim said:
I'm in a bad place. I am tied to a device that creates AIR. Without it, I die...I am getting so frustrated. I don't even know why I am posting this. Thanks for being here...
Click to expand...

Sorry about your air problem but every one of us on SF is at some stage of DYING, including yours truly.
 
Jim,sorry to hear about your problem.
Please stay with this forum,as others have said,if you need to vent,continue to do so. I'll keep you in my nightly prayers Sue
 
Life gets tough sometime. We have to compensate, make adjustments, realize we can't do what we used to do.
 
Not being able to catch a breath is one of the scariest things there is to have to experience. My mom developed pulmonary fibrosis which is when your lung slowly turns to stone. When a young brash medic in the hospital took out my mom's breathing tube to try and get her to breath more on her own, that panicked her and I to this day will not forgive him. She wasn't the same after that. Just think about living without being able to breath without help! No, I don't agree that one has to just adjust. Would anyone say that about a cancer patient--you just have to adjust? Hell no. Jim has every right to feel the way he does. Of course, I hope he gets better oxygen equipment. But let me tell you something, I would feel justified in wanting to feel bad and want to cry, too!
 
I'm fairly new to this forum, but always enjoy your posts, Jim. Please hang in there and know that this community cares about you.
 

You must log in or register to reply here.

Back
Top