This is an oldish thread Sassycakes and your family's difficult journey is probably nearing the time of your nephew's exit from this world. As I read the story I was deeply moved as it paralleled the story that I myself recently lived: 18 yrs after dad died I lived with Mom; 3 yrs after she fell and broke her back I was her 24/7 nurse; for 56 days after she fell again and broke another vertebrae she was in hospice care.....in hospital and skilled nursing home....I sat with her every day up to the very last moment, almost 5 months ago now. I was the only family she had.
I think your family demonstrates great merit in sharing the tasks of caring for the young man. My thoughts are with you all, people whom I do not know, as you are traversing this difficult path, now and also in the days, weeks, months and years to come as you remember your nephew's life and also recall the experiences you all lived through as you attended his departure from this world.