Long Covid disabled them. Then they met a ‘broken’ Social Security disability process

Paco Dennis

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Location
Mid-Missouri
"Pushing through cognitive impairment, migraines and severe fatigue, Michaelene Carlton, 49, mustered up the energy last week to dial the Social Security Administration to speak to her newly appointed Social Security Disability Insurance case manager. She has left six messages, one every two weeks since late December, and she still hasn’t heard back.



Carlton, who says she has had long-term Covid-19 symptoms since March 2020, is one of up to 23 million Americans estimated to be living with post-acute sequelae SARS-CoV-2 infection. PASC is the medical name often given to Covid-19 symptoms that last or evolve after an initial infection. Those estimates are from the Department of Health and Human Services as of late last year.



The chronic condition can include symptoms from memory loss and extreme fatigue to muscle weakness and musculoskeletal pain. Patients can struggle for months and even years, and many cannot work during that period.



A study by The Brookings Institution found that as many as 683,000 workers may have had to leave the labor force due to long Covid as of October 2022.



Pandemic issues and budget cuts at the Social Security Administration, which handles SSDI claims, have resulted in the lowest staffing levels in 25 years, according to the Center on Budget and Policy Priorities. That has kept long Covid cases backlogged.



Decision wait times for disability insurance can range from months to years, according to data from nonprofit think tank USA Facts. Rebecca Cokley, program director for disability Rights at the Ford Foundation, agrees the SSDI process is arduous and can last years before granting an applicant approval or denial.



“Around 10,000 people die a year waiting for disability,” Cokley said. “With long Covid, I only expect it to get worse.”



Carlton says she has spent the last three months trying to find out the status of her disability application. Everything rides on whether she gets approved, Carlton told CNN. SSDI’s monthly benefits are generally around $800 for individuals and $1,300 for families.



“It’s my family’s future,” she said, “I can’t do much physically. I can’t work. This way, I could at least contribute something. It would allow me to feed my family. But the system is broken.”"


4 minute read

https://www.cnn.com/2023/02/25/business/long-covid-workforce-issues-disability-claims
 

Last night I watched a programme on TV talking to Doctors and nurses who contracted Long Covid from working at hospitals and facilitiesduring the height of the Pandemic. They have been on full pay until now... in March some will have their salary reduced by half, and other will lose pay completely and have been told they have to sign on for unemployment benefit. One nurse had to sell her home... all because they were not given the correct PPE even tho' they begged for it from their bosses while working. Instead they were given simple masks which Joe public were told to wear

One nurse said she was told be her bosses while she was working with seriously ill covid patients.. just to bring in a spare set of clothes, because there was no PPE to give her.

National Scandal..
 
The OP makes me cry; yet I thank you for posting about it, @Paco Dennis

An additional reason that makes the SSDI so crucial, is that not only is it the only possible income source for some people, approval also comes with being able to access Medicare, (for those under retirement age)
which is the only medical expense help or insurance, that some are eligible for.
 

This is what you get when you made it easy to get SSDI. Once people found out getting SSDI was easy, they plugged the system.

Now, you have to actually prove it. Have approved documentation and have your illness be a "Recognized" illness from SS.

The long covid illnesses will take time to adjust and resolve. And as the article said "Low staffing is also causing the backlog" the courts are jammed so the backlog will be there for years.
 
Alcohol intolerance can be a part of long covid.

Dr. Stuart Malcolm, an internal medicine physician who solely treats long COVID patients at the RTHM clinic, said many people with long COVID have given up alcohol entirely “because it seems to universally not make people feel well.” But he estimates that about 5% to 10% of his patients (or about 10 to 20 people in his practice) are experiencing this intolerance as they continue to experiment with alcohol consumption.

[When they consume alcohol], people’s face, neck, and chest become flushed — warm and pink or red in color — almost immediately after drinking alcohol. They may also experience stuffy nose, nausea, vomiting, rapid heartbeat, low blood pressure, headache, diarrhea, and worsening asthma.
https://www.buzzfeednews.com/article/katiecamero/alcohol-intolerance-long-covid
 
My dear friend that passed of a sudden heart attack in April 2020. All the formal paperwork was done. Most everything was handled in about 120 days. There was still one thing outstanding from his federal employment. We were told it might be 18 months before it was reviewed and approved. Things were back logged with increases due to Covid. My son received the check about 3 weeks ago.

It was not any urgent kind of thing for us, we knew they were a lot of people/families struggling, they needed to be taken care of first.
 


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