Next Cancer infusion treatment

Llynn

Llynn

Non-ranked Constituent
Location
Pacific NorthWET
Tuesday is bloodwork day in preparation for my fourth infusion treatment. I get one every three weeks.

Over the past two weeks I've started experiencing some of the bone-joint pain they warned me about. First my left little toe acted up and now it's the right one. Pain is severe and I find it hard to sleep. Have a phone appointment with one of my Oncologists tomorrow (I now have two working with my case...one surgeon and another overseeing my treatment). Hope they can do something about this bone pain.
 

Llynn said:
Tuesday is bloodwork day in preparation for my fourth infusion treatment. I get one every three weeks.

Over the past two weeks I've started experiencing some of the bone-joint pain they warned me about. First my left little toe acted up and now it's the right one. Pain is severe and I find it hard to sleep. Have a phone appointment with one of my Oncologists tomorrow (I now have two working with my case...one surgeon and another overseeing my treatment). Hope they can do something about this bone pain.
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Llynn..I hope that they can come up with something you can take to ease that pain... if you have no way of avoiding it as an effect of the infusion ... fingers crossed 🤞
 
@Llynn I am so sorry.

Husband had prostate cancer that returned. He ended up having terrible pain after his treatments the second time. There wasn’t a prescription painkiller on the market that would give even the smallest amount of relief from the pain.

They gave him IV’s of morphine, but I can’t remember at what point following the treatments.

Morphine is not the best choice, but maybe the only choice if you have someone to drive you.

I might also consider @Jules suggestion of pot ahead of morphine.

Prayers and hugs to you Lynn🙏🙏
 
Llynn said:
Tuesday is bloodwork day in preparation for my fourth infusion treatment. I get one every three weeks.

Over the past two weeks I've started experiencing some of the bone-joint pain they warned me about. First my left little toe acted up and now it's the right one. Pain is severe and I find it hard to sleep. Have a phone appointment with one of my Oncologists tomorrow (I now have two working with my case...one surgeon and another overseeing my treatment). Hope they can do something about this bone pain.
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I'm so sorry for what you are going through and experiencing with the pain. I hope they can give you something that provides relief. Not counting the 4th, how many more infusions do you have to get?
 
I'm so sorry, Llynn, for what you are experiencing.

I get severe pain on the side of my right big toe, which had had a painful infection. Pain still lingers. I fall asleep by draping the right leg over the side of the bed, with toe dangling downward. I get almost instant relief.
 
M
Llynn said:
Tuesday is bloodwork day in preparation for my fourth infusion treatment. I get one every three weeks.

Over the past two weeks I've started experiencing some of the bone-joint pain they warned me about. First my left little toe acted up and now it's the right one. Pain is severe and I find it hard to sleep. Have a phone appointment with one of my Oncologists tomorrow (I now have two working with my case...one surgeon and another overseeing my treatment). Hope they can do something about this bone pain.
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I too hope they can do something about your pain. You have been a trooper and deserve some relief. 🌺
 
I'm age 90 with very bad arthritis pain. I find that DISTRACTION by playing a computer game for 5 to 7 hours per day totally ends my pain until the next day. The game I like to play for this purpose is Civilization VI.

By the way, I was in the care of Vitas Hospice nurses in my home for 3 weeks back in October, 2018. That is when I got the idea of using some distraction since no drugs worked for me.
 
If you don’t mind me asking, what type of infusion do you get? My sister received both chemo and iron infusions. She also had bone pain because her cancer metastasized to her bones. She was given opioids for pain, until she had in-home hospice, then she was put on a morphine drip and finally a fentanyl patch.

I wish you the best.
 
I see my pulmonologist in 2 weeks to determine what to do about the newest lung nodule. During this last hospitalization for pneumonia and heart failure, another pulmonologist suggested a biopsy. Rather dicey affair since my age precludes me from having a general anesthetic. I had radiation for the other 2 4 years ago and they were successful. For some reason, this time around, that hasn't even been brought up as an option.

If this turns out badly after my visit, I am thinking to just let nature take its course. After seeing what so many of my patients and loved ones have gone through, I am reluctant to consider any type of drastic measures. However, in Llynn's case, I presume she's a bit younger than I, so if she can withstand double doses, I say, go for it. Stop it in its tracks. Perhaps Fentanyl patches will help. They did for my daughter in law. Praying all goes well. 🙏 🙏 🙏
 
Lewkat said:
I see my pulmonologist in 2 weeks to determine what to do about the newest lung nodule. During this last hospitalization for pneumonia and heart failure, another pulmonologist suggested a biopsy. Rather dicey affair since my age precludes me from having a general anesthetic. I had radiation for the other 2 4 years ago and they were successful. For some reason, this time around, that hasn't even been brought up as an option.

If this turns out badly after my visit, I am thinking to just let nature take its course. After seeing what so many of my patients and loved ones have gone through, I am reluctant to consider any type of drastic measures. However, in Llynn's case, I presume she's a bit younger than I, so if she can withstand double doses, I say, go for it. Stop it in its tracks. Perhaps Fentanyl patches will help. They did for my daughter in law. Praying all goes well. 🙏 🙏 🙏
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My hopes for your welfare. BTW, this Llynn is a he. it was my Welsh GGGrandfathers name
 
Lewkat said:
I see my pulmonologist in 2 weeks to determine what to do about the newest lung nodule. During this last hospitalization for pneumonia and heart failure, another pulmonologist suggested a biopsy. Rather dicey affair since my age precludes me from having a general anesthetic. I had radiation for the other 2 4 years ago and they were successful. For some reason, this time around, that hasn't even been brought up as an option.

If this turns out badly after my visit, I am thinking to just let nature take its course. After seeing what so many of my patients and loved ones have gone through, I am reluctant to consider any type of drastic measures. However, in Llynn's case, I presume she's a bit younger than I, so if she can withstand double doses, I say, go for it. Stop it in its tracks. Perhaps Fentanyl patches will help. They did for my daughter in law. Praying all goes well. 🙏 🙏 🙏
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My thoughts are with you too, @Lewkat
🙏
 
I wish you well and hope everything works out. Having spent about two years fighting prostate and stage four throat cancer I can understand what you're going through. Chemo, radiation (38 weeks) and surgery for me. It's gonna be tough and recovery takes awhile. Stay strong and fight hard. You'll get through it.
 
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Lewkat said:
I see my pulmonologist in 2 weeks to determine what to do about the newest lung nodule. During this last hospitalization for pneumonia and heart failure, another pulmonologist suggested a biopsy. Rather dicey affair since my age precludes me from having a general anesthetic. I had radiation for the other 2 4 years ago and they were successful. For some reason, this time around, that hasn't even been brought up as an option.

If this turns out badly after my visit, I am thinking to just let nature take its course. After seeing what so many of my patients and loved ones have gone through, I am reluctant to consider any type of drastic measures. However, in Llynn's case, I presume she's a bit younger than I, so if she can withstand double doses, I say, go for it. Stop it in its tracks. Perhaps Fentanyl patches will help. They did for my daughter in law. Praying all goes well. 🙏 🙏 🙏
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Oh Lois, I know you're a very private person when it comes to personal issues, but I hope you will keep us updated on this , I personally would want to keep you in thought, and heart as you go through this latest journey ...I hope and pray that your visit in 2 weeks brings you the best choices..🤗
 
hollydolly said:
Oh Lois, I know you're a very private person when it comes to personal issues, but I hope you will keep us updated on this , I personally would want to keep you in thought, and heart as you go through this latest journey ...I hope and pray that your visit in 2 weeks brings you the best choices..🤗
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Thank you, Holly. I am fortunate that it's nodules that are very small in diameter that we've been dealing with, considering my past of very heavy duty smoking. I consider myself fortunate indeed. No cough, mild COPD, nor shortness of breath. My O/2 levels are near 100%, except when I had pneumonia. But apparently something is going on inside this nodule that's making everyone so nervous. Will update you, for sure.
 

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