Not that anyone is asking

I get those kind of cramps. My feet get all twisted up when they happen, they turn inward and the soles face upward and my toes point north and southward; crippling pain and literally crippling.

Imaging has shown time and again that it isn't sacral, no matter how hard my spine docs insist it hasta be.

In my case, it's the obturator nerve, which originates at L4.

Here's the thing: There's supposed to be only one nerve root on either side of each vertebra. My L4 has two on one side and one on the other, and that extra one presses against the other, sometimes a lot, sometimes not a lot.

It's assumed that abnormality is a birth defect, possibly genetic, and extremely rare...3 reported cases world wide when mine was observed during open surgery in 2017.

I'm certain redundant nerve roots are genetic, that they can occur anywhere in the spine, and that they're actually pretty common. Nerve roots are super-tiny things and it's only recently that some types of imaging can pick them up. I'm betting that doctors are going to start seeing a lot of these as imaging gets better and better.

I don't doubt redundant nerve root (aka, twinned nerve root, aka, double nerve root) is the cause of most people's chronic back and neck pain. Shiddy thing is, you can't remove the evil twin, or kill it with chemicals. They branch off. They do things; they operate, like any nerve root.

Probably someday, surgeons and back specialists will figure out how to isolate them, so the two can't come into contact with each other and trigger pain and those wild leg and foot symptoms. And, I think probly soon, like within 5 or 10 yrs.

I'm guessing twinned nerve roots in the cervical spine cause visual disturbances, hearing loss, shoulder, arm, and hand pain, numbness, burning, and trembling....those sorts of things.
I thought that I was the only one with the feet twisting up and causing excruciating pain. It climbs into my calves and if I do not get up and begin hobbling around to walk it off, I am done for.

I have a fracture at L-1 that hasn't healed correctly, and is causing a stenosis in that area. At L-4 the disc is stenosed and bulging, causing a problem with that nerve plexus. Another stenosis is at the sacrum meeting the coccyx, and the sciatic never plexus is so compromised that only a nerve block every 4-6 months relieves it.

I've gone the epidural route, with minimal stenosis relief. I will not even begin with what is found in the cervical spine, limiting my right shoulder and arm usage. I am left-handed, fortunately.

But, this is not genetic with me, Frank. I only had boys to play with as a kid, and I did what they taught me. I was their little sister, and who knew boys and girls were built differently at a certain age? Later in life, though, when my husband was killed in Nam, I was left to raise our son. Mom knew how to teach him all those boys games. From marbles, to football, and everything in between.

I've deliberately left out much in the way of medical detail, since nurses tend to get carried away with same. But, you more than get the picture.
 

... you more than get the picture.
I definitely do. In addition to the twinned nerve root, I had the bad fall I've posted about a number of times that caused 2 spinal fractures. In the 30yrs since, I've had 3 open spinal surgeries, 3 RFAs, and several trigger-point injections. No lasting relief, as you likely know.

I keep saying, one of these days spinal repairs will be far more simple and waaay more successful. It's inevitable. One of the reasons I donated my corpse to the medical university here is the hope it helps some student or specialist take a step in that direction. One thing they'll see is the damage steel rod & anchor implants can do over time. That alone is a win in my book.
 
I thought that I was the only one with the feet twisting up and causing excruciating pain. It climbs into my calves and if I do not get up and begin hobbling around to walk it off, I am done for.
An added note: I do the hobbling around also, and then, just as it starts to calm down, I sit on a fairly firm chair....it's lightly upholstered. Within 5 minutes of sitting, 8 at most, everything stops completely, even the tingling that usually lingers for a while. PLUS, the cramps usually don't restart after I go back to bed or whatever.

Obviously, that's basically doing spinal compression. I've discovered there's a time to decompress and a time to compress. At those certain times, one is just as beneficial as the other.
 

An added note: I do the hobbling around also, and then, just as it starts to calm down, I sit on a fairly firm chair....it's lightly upholstered. Within 5 minutes of sitting, 8 at most, everything stops completely, even the tingling that usually lingers for a while. PLUS, the cramps usually don't restart after I go back to bed or whatever.

Obviously, that's basically doing spinal compression. I've discovered there's a time to decompress and a time to compress. At those certain times, one is just as beneficial as the other.
Yes, that's precisely what I do as well and could not agree more.
 
Pain in my feet and lower legs as well as having to constantly pee is waking me up! My prostrate is killing me! :p
Oh wait that’s not right! :oops::ROFLMAO:
This is a handful of nuts, but I'd say my prostate is the healthiest part of me at this point. And I might've dodged a bullet, because my dad was diagnosed with prostate cancer when he was my age...found early, fortunately. None of my brothers have ever had prostate issues, either, though. Statistically, that puts us in a minority.

Well, my heart's in like-new condition, too. Or, at least it appears gently-used, but that's gotta be a deception. ;)
 
I thought that I was the only one with the feet twisting up and causing excruciating pain. It climbs into my calves and if I do not get up and begin hobbling around to walk it off, I am done for.

I have a fracture at L-1 that hasn't healed correctly, and is causing a stenosis in that area. At L-4 the disc is stenosed and bulging, causing a problem with that nerve plexus. Another stenosis is at the sacrum meeting the coccyx, and the sciatic never plexus is so compromised that only a nerve block every 4-6 months relieves it.

I've gone the epidural route, with minimal stenosis relief. I will not even begin with what is found in the cervical spine, limiting my right shoulder and arm usage. I am left-handed, fortunately.

But, this is not genetic with me, Frank. I only had boys to play with as a kid, and I did what they taught me. I was their little sister, and who knew boys and girls were built differently at a certain age? Later in life, though, when my husband was killed in Nam, I was left to raise our son. Mom knew how to teach him all those boys games. From marbles, to football, and everything in between.

I've deliberately left out much in the way of medical detail, since nurses tend to get carried away with same. But, you more than get the picture.
Lewdcat - how are your veins?
 
Please give me another story. Pretty please!
Men like to pass things down to their sons. They’re called heirlooms. And while the word heirloom might seem quirky or even nonsensical to some, it is a compound word that, in essence, when broken down into its two parts, explains the history and nature of mankind.

You’ve got the word heir, a child of your loins, stuck in front of the word loom, which is a tool. And, indeed, many heirlooms were just that, tools; valuable objects of a man’s trade, passed down to his son, who, traditionally, took up the very same trade after spending his entire childhood learning to master it.

Now, not all men are tradesmen, so it follows that not all heirlooms are tools. Some are merely sentimental objects. And, in the case of a poor man, not all of these objects are valuable; at least, not in the eyes of other men.

Such was the case with the Gilmore Heirloom Rattlesnake Boots.

I knew none of the Gilmore men personally. I only heard about ‘em from my Uncle Roy, who heard about ‘em from his daddy, who heard about ‘em from his daddy, whose daddy was a personal friend of Charles T. Gilmore the First.

This is a story that goes way back to the 1790s, when, at the age of 17, Charles Gilmore the First and his young bride, Madeline, settled just outside of old Boondorf, Idaho, taking up residence in a little wooden cabin that had been hastily built and abandoned shortly thereafter by a person or persons unknown.

Now, Charles the First never met his daddy and didn’t possess any particular skills, having had no training. He scraped out a livin’ hiring himself out to various farmers, farriers, miners, and merchandizers, for a dollar a week; low wages, even for those times. But it was said back then that Maddie could feed an entire army on an ounce of grain and the head of one small trout, and, despite the tight purse-strings, she and Charles managed to raise 8 healthy children.

They were all girls, save for the last one; Charles T. Gilmore the Second. His sisters were all lovely in appearance and manner, and all married reasonably well, and didn’t go wanting for much thereafter. Charles II, however, being heir to no particular trade nor skill learned from his daddy, was destined to remain poor. And the only loom handed down to Charles the Second on the day that Charles the First passed-on was the pair of boots his daddy wore his whole working life.

Now, what ended Charles the First was a rattlesnake bite. On that fateful day, he was watchin’ over his employer’s mules as they grazed on whatever they could plunder in a remote field just outside of Boondorf, when a rattler snuck up on ‘im and bit his right ankle, right through those same hundred-percent cowhide boots.

You could say those boots held a lot of sentimental value for Charles the Second, but, truth be told, it was the first pair of footwear he owned since the age of 3, when he’d well-outgrown the baby slippers that Maddie cobbled for her first-born. She made them from a piece of her grandmother’s satin weddin’ dress - an heirloom that Maddie had to split with her seven sisters.

Poor as he was, Charles the Second managed to find a bride, and they had 4 children, the first one being a son who was named Charles T. Gilmore the Third. Now, tragic as it was that Charles I died from a rattlesnake bite, damned if Charles II didn’t go the same way! Bit in the right ankle, just like his daddy, and in the prime of his life.

So, Charles the Third, now in possession of those boots, wore them with pride as he eked out a living until he was struck down by a rattlesnake bite to the right ankle, and left those boots to a young Charles the Fourth.

Well, I happen to stop in the town of Boondorf, Idaho to visit a tavern on the day that young Charles T. Gilmore the Fourth was presented with those infamous boots during a fancy outdoor ceremony organized by the city mayor, and having stepped out to see what all the commotion was about, was witness to it. And after some of the townsfolk who’d gathered for this ceremony apprised me of the bleak history of those boots, a story I’d heard before and found incredible, I sensed that young Charles the Fourth was feelin’ more the recipient of a family curse than a renowned family heirloom, for he shook visibly as the mayor handed him those ancestral boots…worn pretty thin by this time, I must add.

“Hold on there!” I yelled from the crowd. I then walked purposefully through the gathering townspeople, pushing aside a number of balloons, and brushing right passed a very nervous Charles T. Gilmore the Fourth to stand at the mayor’s festooned podium, where I adjusted the microphone and began, “Now, let me get this straight…”

“You’re tellin’ me that this boy’s great-great-great gampa, Charles T. Gilmore the First, was fatally bitten on his right ankle through this very boot.” I held up the boot that four generations of Gilmores had worn on their right foot.

“And you’re tellin’ me that every Charles T. Gilmore after him, who wore this very boot, met the same fate?”

A growing crowd of Boondorf, Idahoands watched on as I reached inside that right-foot boot and felt around, and only minutes later, pulled out a set of rattlesnake fangs that had been embedded in the interior of its ankle.

I held the fangs up over my head, and the crowd gasped. “Here’s your culprit!” I exclaimed, and the crowd cheered, and young Charles T. Gilmore the Fourth fainted…from relief, I assume, knowing he’d die non-too-soon, and most likely from natural causes.
 
I'm feelin' really good today. Been out of the wheelchair more than in. It isn't a graceful gait, but it gets me there; I fell a couple times, but got myself up again, pretty much unhurt.

If I get 3 days in a row like this, I'm gonna go for a walk down the street. Maybe I'll have Abel walk with me. He's a neighbor kid who checks on me at least once a week and helps out here if I ask him to....a really good kid.

Today, I went out back to take the rain covers off the cat shelters and pick the last of the reachable oranges. I even pulled some weeds. Abel's been mowing and edging the lawns every 2 or 3 weeks. He'd never used a lawnmower before, if you can believe that. His parents turned their yards into rock & sand gardens when the city imposed strict watering restrictions several years ago. I showed him pictures of the yard and my veg/herb garden that I took last year, explained how to use my yard tools, even showed him some videos of people using theirs.

Abel discovered he loves doing yardwork; loves using the mower and edger and weedwacker and all. He's talking about starting his own little grounds-keeping business (he's 16). And that's all good, but I'm thinking I can get back to doing the yardwork here myself soon. I'm itching to.

Abel negotiated a crop-share deal with me: in exchange for a small portion of the veg garden, he'll help take care of the whole thing. We'll get started on that in a few days, if all goes well.

Anyhow, it's a beautiful sunny day.
 
We had beautiful weather all week. Sunny, tolerably warm, bird-friendly. I'm careful not to over-feed the homeless cats so they'll keep hunting for healthier food like mice and voles and bugs, or whatever, but I give 'em a bit extra when the birds start coming around. I still see little piles of feathers now and then, though. Eh, c'est la guerre, right?

And it's been two steps forward, one step back all week, too. Just when I think I'm gonna be out of this wheelchair, like, tomorrow, my legs say "Think again, Bud, and get comfortable."

This is why I didn't fight to adopt Paxton. And to adopt him, I had to agree to adopt the twins, too. This would not have been fun for them; watching ol' Unco Fwank learning to walk instead of taking them outside to play, or taking them fishing and camping, and to baseball or football practice, or ballet classes, or whatever they're into. Instead, we could all sit and paint or model clay or do puzzles for about 30 minutes at a time. That'd be a total drag after a while. A very short while.

Anyway, I try not to think about Paxton. Makes me too sad. I try to just focus on getting back on my feet. But I'm kind of running out of steam, though. I'm not as driven as I was the last time I was here, when I was 50. And, let's face it; I'm not as strong, physically. Or mentally, either, for that matter.

Well, anyway, the weather's still very nice and sunny. Me and my little buddy, Abel, are gonna get started on a garden soon. He knows he'll be doing most of the work, and he's all chuffed about that, but as the weather gets warmer and brighter, and school lets out for summer, and his friends start coming around with their basketballs and sh*t...well, we'll see how it goes. I expect Abel's enthusiasm for gardening will wane. And that's ok.

Michelle likes gardening, and so does Ariel (my granddaughter). Be nice to see more of her.

Meanwhile, I bought some supplies and been working on a painting. I'm way out of practice, but it's gradually coming back to me. The weird thing is that my hands don't work like they used to, and I'm having a hard time adjusting to that. I guess it's kind of fortunate that, to me, it's pretty funny sometimes. Frustrating for sure, but pretty funny. I keep thinking of Bob Ross and his "Happy little accidents." 🤪
 
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Hi Frank. Though not perfect, you’re having more upbeat days.
The pain is horrible, Jules. :(
Three cheers for Abel being there to assist. He sounds like a really good kid.
Yeah, Abel's a good kid. No drugs, no gang activity, nothing like that. He likes our yard because his is half cement, half dirt, he says, and his dad is always working on one of their cars out there. 3 families live in his house; his family of 5, his aunt & uncle's family of 4, and one set of grandparents. They have 4 cars between them. The newest is a 2010, a monstrous Chevy SUV....Equinox, I think, and the dad's always working on 1 or 2 of them.

They're all immigrants from somewhere in Central America, and the grampa is the only one in the family who can work legally. The other adults bring in what they can, working under-the-table, but the grampa had a steady construction job until a couple months ago. Poor old guy fell off a roof and broke 3 ribs and damaged his pancreas or something (Abel's English is pretty good, but he doesn't know anatomy so well). Grampa was everyone's main support. He was in the hospital for over a month and got home a couple weeks ago, but he can't go back to work yet.

Anyway, me and Abel got a nice little garden going here. If his family is still struggling when things are ready to harvest, I'll let him take home the lion's share. No deal if he doesn't show up and do the work, though. Might sound a little harsh, but there's a valuable lesson in there.
 
@Murrmurr

It's lovely that Abel has you as a mentor. His family life must be stressful, with little privacy.

I'm sorry to hear that you are in pain :(
Abel's younger brother came to ask me if I'd hire him to do chores around the house once a week. That was 6 weeks ago, and the kid hasn't missed a Monday yet. He's only 11, but he's big for his age, and he's had the routine down since Monday #1.

First, he sets up all the sprinklers to water the yards. Then he changes all the cat litter boxes and bags up the old litter then takes it and the trash out to the bins, then takes the bins down to the curb. Then he walks me on the gait trainer, or, if I'm having a good day, up and down the street a ways. Then he turns off all the sprinklers, and I give him 10 bucks.

First time he walked me down the street, he didn't want to do it. Because he winced, and it was like a sad wince, I asked him why not. He said it was because we'd have to walk past this house where some kids live who bully him a lot, make fun of him whenever they see him. So I said "You make a point of walking me past that house....twice! Up and back, you got me?"

They haven't bothered him since. At all. In fact, when I asked him about it the following week, he looked at his feet and smiled really big.

Able still takes care of the garden. Since I pay his brother, I offered to pay him, too, but he refused. He reminded me he's doing it in exchange for what he'll harvest.
 
I'll see my back surgeon on August 5th....not until then because the lady who set up the appointment thinks I'm a liar.

See, what happened is, I kept the standing appointment I had with my pain management doc. He was going to do a trigger-point injection, but I told him I'd seen the image reports and was leaning toward surgery instead. So this became a consultation/second opinion visit, and he said he'd note that on my chart so that the spine specialist and his office people would know that. He said I could call the spine specialist's office soon as I got home cuz that note would be there.

Well, I called them the next day and the lady said she'd have to set my appointment several weeks out because I had the injection, and I told her I didn't, and there should be a note about that from my pain doc. She didn't believe me, she just set the appt for Aug 5th. And I could hear the contempt in her voice, I'm serious.

So I called again that afternoon and got a different lady. She found the note from my pain doc within one minute - I suspect the other lady didn't look very hard - but she said it was too late to change the appt. Personally, I think she's a liar. I think she just doesn't want any attention on the other lady's laziness error. The director of that spine center is really strict, and he's hard on people who make mistakes like this. They get transferred immediately.

I told this second lady that my surgeon seemed really anxious to do the surgery, and that my spinal cord is in jeopardy, and she said she'll call me if another patient cancels an earlier appointment time.

Here's the thing, I knew that if I'd gotten the injection I'd have to put off surgery, cuz you have to wait til the chemicals wear off. Well, since that first lady thought I was a liar and the second lady is protecting that first lady, I have to wait anyway. I could have gotten the freaking injection! I could be in way less pain between now and Aug 5th.

Now, I'm not 100% positive this is all what happened, I'm only about 93% sure. :mad:
 
@Murrmurr

I'm so glad that you have Abel's company. He sounds like an exceptional human being, even at his age. He should go far in life, with such a good work ethic.

I hope those bullies leave him alone, for good.
It's Abel's little brother. His name is Fidel. And, yes! I think he'll go far in life. And I think he's learning to ignore the bullying. I'm gonna keep working with him on that.
 


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