Lewkat
Senior Member
- Location
- New Jersey, USA
I thought that I was the only one with the feet twisting up and causing excruciating pain. It climbs into my calves and if I do not get up and begin hobbling around to walk it off, I am done for.I get those kind of cramps. My feet get all twisted up when they happen, they turn inward and the soles face upward and my toes point north and southward; crippling pain and literally crippling.
Imaging has shown time and again that it isn't sacral, no matter how hard my spine docs insist it hasta be.
In my case, it's the obturator nerve, which originates at L4.
Here's the thing: There's supposed to be only one nerve root on either side of each vertebra. My L4 has two on one side and one on the other, and that extra one presses against the other, sometimes a lot, sometimes not a lot.
It's assumed that abnormality is a birth defect, possibly genetic, and extremely rare...3 reported cases world wide when mine was observed during open surgery in 2017.
I'm certain redundant nerve roots are genetic, that they can occur anywhere in the spine, and that they're actually pretty common. Nerve roots are super-tiny things and it's only recently that some types of imaging can pick them up. I'm betting that doctors are going to start seeing a lot of these as imaging gets better and better.
I don't doubt redundant nerve root (aka, twinned nerve root, aka, double nerve root) is the cause of most people's chronic back and neck pain. Shiddy thing is, you can't remove the evil twin, or kill it with chemicals. They branch off. They do things; they operate, like any nerve root.
Probably someday, surgeons and back specialists will figure out how to isolate them, so the two can't come into contact with each other and trigger pain and those wild leg and foot symptoms. And, I think probly soon, like within 5 or 10 yrs.
I'm guessing twinned nerve roots in the cervical spine cause visual disturbances, hearing loss, shoulder, arm, and hand pain, numbness, burning, and trembling....those sorts of things.
I have a fracture at L-1 that hasn't healed correctly, and is causing a stenosis in that area. At L-4 the disc is stenosed and bulging, causing a problem with that nerve plexus. Another stenosis is at the sacrum meeting the coccyx, and the sciatic never plexus is so compromised that only a nerve block every 4-6 months relieves it.
I've gone the epidural route, with minimal stenosis relief. I will not even begin with what is found in the cervical spine, limiting my right shoulder and arm usage. I am left-handed, fortunately.
But, this is not genetic with me, Frank. I only had boys to play with as a kid, and I did what they taught me. I was their little sister, and who knew boys and girls were built differently at a certain age? Later in life, though, when my husband was killed in Nam, I was left to raise our son. Mom knew how to teach him all those boys games. From marbles, to football, and everything in between.
I've deliberately left out much in the way of medical detail, since nurses tend to get carried away with same. But, you more than get the picture.