Well, dang, after three years in remission, cancer is back

Aneeda72

Aneeda72

Well-known Member
I’ve been extremely tired. It’s been hard to do my walking. My stomach is killing me. I feel generally awful. I’ve been losing a pound a day.

Went to the doctor cause I thought my cancer was back.

He did a blood test. Yup, cancer”s back.

He wanted me to go to the hospital ER so they could do further testing. Great idea. Go sit in a crowded ER, with tons of sick people, for 4/5 hours till you get seen, and walk out with cancer and Covid. Nope.

Tomorrow I’ll go to VA hospital really early when it’s not busy. Let them do the testing and get set up for the VA to pay for treatment. Already called Huntsman cancer center to see when I can get an appointment. Ugh.
 

Aneeda72 said:
I’ve been extremely tired. It’s been hard to do my walking. My stomach is killing me. I feel generally awful. I’ve been losing a pound a day.

Went to the doctor cause I thought my cancer was back.

He did a blood test. Yup, cancer”s back.

He wanted me to go to the hospital ER so they could do further testing. Great idea. Go sit in a crowded ER, with tons of sick people, for 4/5 hours till you get seen, and walk out with cancer and Covid. Nope.

Tomorrow I’ll go to VA hospital really early when it’s not busy. Let them do the testing and get set up for the VA to pay for treatment. Already called Huntsman cancer center to see when I can get an appointment. Ugh.
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What type of cancer is it if I'm not getting too personal?
 
Aneeda72 said:
I’ve been extremely tired. It’s been hard to do my walking. My stomach is killing me. I feel generally awful. I’ve been losing a pound a day.

Went to the doctor cause I thought my cancer was back.

He did a blood test. Yup, cancer”s back.

He wanted me to go to the hospital ER so they could do further testing. Great idea. Go sit in a crowded ER, with tons of sick people, for 4/5 hours till you get seen, and walk out with cancer and Covid. Nope.

Tomorrow I’ll go to VA hospital really early when it’s not busy. Let them do the testing and get set up for the VA to pay for treatment. Already called Huntsman cancer center to see when I can get an appointment. Ugh.
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Oh No....... :(😖
 

Aneeda72 said:
I’ve been extremely tired. It’s been hard to do my walking. My stomach is killing me. I feel generally awful. I’ve been losing a pound a day.

Went to the doctor cause I thought my cancer was back.

He did a blood test. Yup, cancer”s back.

He wanted me to go to the hospital ER so they could do further testing. Great idea. Go sit in a crowded ER, with tons of sick people, for 4/5 hours till you get seen, and walk out with cancer and Covid. Nope.

Tomorrow I’ll go to VA hospital really early when it’s not busy. Let them do the testing and get set up for the VA to pay for treatment. Already called Huntsman cancer center to see when I can get an appointment. Ugh.
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I'm so sorry to hear that. I'm sending positive thoughts and hope you get good care from the V.A.
 
So as luck would have it, I bought my favorite ice cream Thursday. Last night, in the wee hours, when I threw my pity party, I had plenty of ice cream. My daughter and I find that ice cream cures all. So, now I am good to go up to the VA and see what they say. Hopefully it won’t take forever. Their ER room never looks busy and I am going very early.

Plus Banbury Cross is on the way so stopping for the best donuts, and donut holes, in the city. By Monday, I will probably have gained the 7 pounds back 😂. I am a stress eater. I told my Joey that his lunch delivery might be late. I’ll buy him some donut holes. He got his new bed yesterday, one of those kind that adjust, so he should be able to breathe better.

Huntsman cancer center called and said by the time they pulled up the blood test results the woman who works the appointment desk had left. They will call Monday and get me an appointment. Which is fine, cause their is no rush as far as I know, and if there is a rush, the VA will take care of it.

In order for the VA to pay for treatment, I need to go there first anyway.

I looked at my blood test results, white count is 14,700 and the Neutrophil, Abs 12.4. Those Abs have never been so high so I am a bit worried about leukemia. 🙄. I hate the early stages of any disease process, because I become so reactive. Plus I hate having another thing again to add to my long list of things.

I decided to buy a puppy. While I do not like dogs, I love puppies. I have found a mix breed puppy and I sent a message last night that I wanted to buy one. I am sure the people didn’t mind the 2am response. 😂😂😂. There is another puppy I like in Idaho, might ask the son to drive up there and get it for me if the puppy here is gone. Ugh.

@Pepper, well if it turns out your cancer has come back as well, and I hope it hasn’t, we can row the cancer boat together. The only treatment for MDS is chemo as far as I know. I decided not to ever get chemo. Never did. And I never will. I did have surgery for my breast cancer zero, but no follow up radiation or chemo.

Two years ago, that crap came back as well in the very same place. The doctor popped a bead in and they are watching it. 3 of my thyroid nodules are pre-cancerous and I have to have an ultrasound every year to check on that; it’s ridiculous.

And @Pepper your emotions tend to go haywire; which is a negative situation for cancer and can, strangely, make it worst. Your fast weight lost can really make you feel awful and cause the weakness. I have the same issue. Plus I wore a mask the whole time I was at the instant care among the dozens of sick people. Some wore masks, some didn’t. Stupid people. Made husband wear a mask as well.

Well, off to the VA and donut shop 😂.
 
I have an appointment at the Hunstmans Cancer Center Dec. 3. Saw the doctor in clinic today. He won’t refer me to the VA oncologist until I totally switch over to VA care; because I do have private care available with the previous care provider. Plus there are so many forms of MDS, it’s better I go back we’re my previous records are.

The VA Doctor says remission or not, since MDS is a lifetime cancer where you go in and out of remission, I need to always have an oncologist. Makes sense to me. My private insurance doesn’t work this way.

But the VA doctor also notes that if it’s not MDS, then I have another major issue and a major infection somewhere. This was my thought as well. Plus, it could be both. My stomach really hurts. While a CT with contrast would be great, but since I am in stage 3 kidney failure, with only one kidney, he doesn’t want to risk a scan.

He‘s ordered an ultrasound as a starting point. I saw a first year resident and a senior resident. Both were really nice. The senior resident said he’d like me to change to the woman’s clinic. Woman’s clinic? 😂. I said sure. Got a call couple hours later, appointment in January was changed to Woman’s Clinic.

Got a call from mental health to set up therapy sessions to better cope with jerk husband; and puppy/dog issues. Got an unexpected call later VA that since I had an appointment for my Addison disease on Thursday at 8; would I like an appointment after that appointment so they could scan my eyes. Yup.

I have some tumors growing on the nerve of one eye, but I’ve refused surgery. (Had the surgery on the left eye already for similar tumors.) In the left eye, I have an aneurysm on one of veins. When it either ruptures, or gets too large, they will burn the vein and I will lose sight in that eye. I am afraid to have surgery on the right cause if something goes wrong, I will be blind eventually.

Since my blood pressure is high now, due to the pain I am in and despite two blood pressure medications, they want to photo my eyes and get a good record of the issues. Make sure the aneurysm is not growing.

My medical care is very complicated. Anyway, on Dec 3, I will find out, for sure, if I am out of remission.
 
Aneeda72 said:
I’ve been extremely tired. It’s been hard to do my walking. My stomach is killing me. I feel generally awful. I’ve been losing a pound a day.

Went to the doctor cause I thought my cancer was back.

He did a blood test. Yup, cancer”s back.

He wanted me to go to the hospital ER so they could do further testing. Great idea. Go sit in a crowded ER, with tons of sick people, for 4/5 hours till you get seen, and walk out with cancer and Covid. Nope.

Tomorrow I’ll go to VA hospital really early when it’s not busy. Let them do the testing and get set up for the VA to pay for treatment. Already called Huntsman cancer center to see when I can get an appointment. Ugh.
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What is your feeling about dying? Are you worried about it? Do you accept it? Do you look forward to it?
 
Pinky said:
@Aneeda72

I don't know how you cope, but I admire your resilience and the fact you have a sense of humour.
Dec. 3rd is not too far off. I'm sure you want it all over and done with.
You are so strong, and, you amaze me 🤗
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Thanks @Pinky You are so right I do want it all over. Knowing what exactly is wrong won’t make much difference, but I want to know. Except for the high blood pressure, with 2 aneurysms in my brain, one in my belly, and the one in my eye; high blood pressure is the most dangerous component of my current mess. As we all know it’s always something.
 
Jules said:
So much to think about. Give your new little buddy a hug. Dogs are theraputic.
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Part of my reasoning when I decided to get a puppy again, dogs help lower blood pressure, and I need my blood pressure lower. The medication simply isn’t doing its job even though it was increased.

Henrys roll as a PTSD dog will, honestly, be to help the blood get lower; probably his most important roll. But he’ll also help with my husband 😂.
 

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