What is it like to live with dementia?

Twostep said:
There is long-term care insurance and you will have to research its availability. Premiums as as to be expected steep. Please let SF know what you find out.
Admitting to a facility when not being able to make decisions?
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I live in Australia and all I've got is Medicare and private insurance. We pay for what we can afford and it looks good enough for me. I have my family around me and I'm pretty sure they will put me in a home if they find the going hard.

If I can, I will check myself in even though my family seems to find aged-care homes "horrible". My wife worries about maltreatment and rude orderlies. Even if she's right, it won't matter to me. I don't need people to be nice to me. I'm happy with whatever. It's not the case for my wife, though, but I'll be there for her (hopefully).
 

Amanda76 said:
Well, it's hard to say about financial support.
In general, Nursing home is not cheap. When my late husband stayed for about one month after Cancer-surgery to recover, it was about the same charge, close to $6,000 per month as seeing housing, meals, some special exercise and etc., it's quite understandable in comparison to the hospital stay. Luckily, both Medicare and BCBS took care of all of costs. But, just one month, not 7 or 8 years' stay. My late husband told staff in Nursing home to get back home not burden financially to me, his wife. Afterwords, he passed away in his own bed
My mother-in-law on the hand, she was regarded being 'no income' just SS as she transferred her house to one of his sons prior to having Cancer. She did not need to pay any money having stayed in the Nursing home. She stayed there for about five to seven months and passed away in Nursing Home at age 85.
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We can't afford $6000 a month. Your MIL's final days are good enough for me. I hope you've got support. You've been an angel to your family.
 
I lived with many pts like that 8 hrs a day in a mental asylum ; sometimes dreary ; sometimes funny but always a dredge really - but families couldn't cope with them and they were kept dry reasonably well fed and a little exercise? and sometimes kept us very amused - there was a funny side to it unfortunately
 
I worked as a CNA and took care of many dementia residents. Even though I knew something about the disease it didn't prepare me for seeing it in my own life as one of my close friends who lives in this building got it. It is sad to watch her get worse. The videos of Teepa Snow have been helping me dealing with her. She knows me, but not her husband of 56 years. Often she gets mad at him and will come to my door. I get her watching bunny or horse videos and listen to what she is trying to say. Sometimes I can figure it out.

Now her husband has had an operation and is recuperating at home but their daughter is staying with them till June. After that he is not sure what will happen so is going to get help.
 
hard decision times to come maybe?? but it can get dangerous in a smallish flat and hectic at times - its hard to part but harder to bark??
 

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