DEA cuts opioid supply....again.

I can't get my pain med Rx filled because the DEA cut supplies. My pharmacy said they might have some around the end of January. Meanwhile I'll have to refrain from doing all but a couple of my morning exercises, taking walks, certain housekeeping chores, shopping, cooking, and doing wood projects.

Besides a bum spine, I have RLS, restless leg syndrome. My opiod pain med stopped that by a solid 95%. Last night the RLS kept me awake. It literally kicked off about every hour....in other words, I slept about an hour at a time, then was up for an hour or 2, then went back to bed to try sleeping again.

I read that Gabapentin helps with RLS. I've taken it before but I don't remember if it helped or not....which means it probly did. If it didn't, I think I'd remember that. I do remember it didn't relieve my my back pain. But I'm gonna ask my Dr to Rx it.

DEA Finalizes Cuts in 2023 Opioid Supply — Pain News Network
What about Lyrica (pregablin)- it's similar to Gabapentin, but I find it more effective. It helps me with nerve pain that results from slipped disc, spinal stenosis, and other joys of old age. My daughter has RLS- I think she said magnesium helps? I know magnesium helps her migraines- as in keeps them away!
 

I'm sure that's true. To sleep through the sensation of dozens of bees buzzing inside your knee and then your legs kicking involuntarily, you'd have to be dead.
I bet Lyrica (Pregablin) would help with that- my feet burned and tingled every night until I started taking lyrica three times a day- and I'm on a very low dose (150 in divided doses)- some folks take 750 mg a day- so there's a lot of wiggle room with that med.
 
It's just shocking how the authorities screwed up with Opiods. They allowed Oxycodone on the market, along with terrible literature, too few checks, and out and out lies. Then when the billions had been made, they dialed it back leaving people who actually need the stuff out of luck. It's just a madness.
exactly.
 

My neighbor across the road has been taking Norcos since injuring his back when working at CDCR. His injury does not have a suitable surgical solution, so it's opioids plus whatever gets him through the day...and night. He makes his own beer, which after several glasses of which, I feel like a horse kicked me in the head. Anyway, he smokes pot daily, even makes some cannabis infused beer... 😲 I don't know if cannabis acts on pain like pain meds do, but I think it kind of takes your attention off the pain, which can't be a bad thing.
My grandfather used to brew his own beer using fruits from his trees and vegetables from his garden. His tomato beer got rave reviews from his neighbors.

I used to make my mother a cocktail just before she went to bed, and she was taking morphine for pain and Xanax for depression and anxiety. One cocktail, either gin or whiskey, in a standart rocks glass. She slept well and no harm done.
 
Can you tell us what kind of surgery caused your additional pain? It could help some of us.
The surgeon attached a rod to my spine, and it's a relatively lengthy one. About 8 years post-surgery the vertebrae immediately above and below it have slipped, or you might say bent, due to the strain/pressure of the rod. So the nerve roots are pinched and the spinal column is narrowed in those two spots.

Without medication, the pain is relentless and severe. With medication I can enjoy about 4 hours a day of a very tolerable level of pain.

I take my morning meds with a shot of 5-hour, an energy drink that primarily contains vitamin B12 and B6 in liquid form (very readily absorbed). I take my afternoon meds with a half-shot of 5-hour. This keeps me motivated, active and in a good mood all day without disturbing my sleep at night.
 
The surgeon attached a rod to my spine, and it's a relatively lengthy one. About 8 years post-surgery the vertebrae immediately above and below it have slipped, or you might say bent, due to the strain/pressure of the rod. So the nerve roots are pinched and the spinal column is narrowed in those two spots.

Without medication, the pain is relentless and severe. With medication I can enjoy about 4 hours a day of a very tolerable level of pain.

I take my morning meds with a shot of 5-hour, an energy drink that primarily contains vitamin B12 and B6 in liquid form (very readily absorbed). I take my afternoon meds with a half-shot of 5-hour. This keeps me motivated, active and in a good mood all day without disturbing my sleep at night.
Oh! I'm so sorry you're in so much pain! Is there any way to correct that surgically now?
 
This link says Gabapentin does help with RLS. DEA Finalizes Cuts in 2023 Opioid Supply — Pain News Network

This link explains why the DEA has cut the supply again! DEA Plans Further Cuts in Rx Opioid Supply in 2024 — Pain News Network

My sister is very distressed by her inability to get the pain meds she needs. She is questioning how much longer she wants to live. At this minute she is the hospital to get an MRI because she is in so much pain. The reason for democracy is to empower the individual and there is a problem when agencies take control and the people affected by a decision are not properly represented. A Google search shows concern coming from several sectors focused on preventing the abuse of pain relievers, and those enduring intense pain do not appear to have a voice. I am sure if the people trying to stop the abuse of painkillers were the people who live with pain, the decisions would be different.

I suggest people who really need the medication contact the drug manufacturers and ask the manufacturers to take action to increase the voice of those who are suffering. They have the money and know when there will be a hearing. Besides posting the problem here, you can write the newspaper's letters to editors and use other social media to develop a voice for those who would rather die than continue without pain medication. You can make a video and submit it to the Public Broadcasting Station. You can write to all your representatives and try to speak with them in person if you can and encourage others to do the same.

I have lived with pain for many years and refuse opioids because I don't want something that makes me think I have advanced Alzheimer's disease. Opioids mess up my head really badly. Instead, I begin my day by going to our public pool and sitting in the hot tub. I swim and work out in the weight room and if I walk more than a block I use a walker. I have accepted this as my life. Hot water and my walker are my best friend.

However, I wish chemists would figure out how to balance steroids in our bodies so we could safely use them. A doctor gave me steroids to prevent swelling after surgery. I felt 18 again. :love: I was ready to return to work as a janitor. My daughter panicked and start sreaming, "no Mom, it is the steroids and it won't last". Are you kidding me? There is something that can make us feel that good and get us off disability assistance, I can't have it? Who do I have to donate to for the research we need to make steroids safe?
Reading about the DEA's argument for it's interference, their representative mentions "deaths from overdose", and I wonder how many of those overdoses were actually suicides by pain sufferers who had trouble getting their Rx's the last 2 times the DEA interfered.

About steroids; I was Rx'ed a steroid after my first spinal surgery. It was to promote healthy bone re-growth in my lower spine. Seems to have worked too well...I had bony overgrowth that had to be filed away during a subsequent surgery. But a few years later, steroid injections into a spinal nerve reduced my pain by a solid 80% for several months. Unfortunately, you're only allowed to get that injection 3 times during your lifetime because of the side-effects.

I think medical science will get it figured out eventually. They are working on it.
 
What about Lyrica (pregablin)- it's similar to Gabapentin, but I find it more effective. It helps me with nerve pain that results from slipped disc, spinal stenosis, and other joys of old age. My daughter has RLS- I think she said magnesium helps? I know magnesium helps her migraines- as in keeps them away!
Lyrica and Gabapentin made me foggy and listless.
 
I don't want to chance it. I'm sure I'd be required to give identifying info, which might result in my doctor not prescribing it anymore.
I don’t understand. Why would he care where you had your scripts filled and how would he know, unless you had him fax your scripts? Can’t you get a hard copy and send it yourself to the pharmacist?
 
I don’t understand. Why would he care where you had your scripts filled and how would he know, unless you had him fax your scripts? Can’t you get a hard copy and send it yourself to the pharmacist?
Doctors who prescribe opioids and patients who are prescribed opioids are under scrutiny by the DEA. For the past few years, annually, I'm asked to sign an agreement with my prescribing physician saying that I understand the scrutiny and I'll follow the few rules listed in the agreement. That agreement was created by the DEA. A digital copy of it is in a database, no doubt.

I don't remember if one of the rules is "Do not procure opioids from outside the US"...I doubt it. I just don't want to cause a problem for myself or my doctor, is all. If this planned shortage lasts over 3 or 4 months, I will consider it.
 
I've never had to sign anything of the sort you mention Frank.

eta
but doc told me he did and that he personally was under scrutiny. Didn't mention me.
Could be a California thing. Is pot legal where you are? Maybe there's extra oversight in states where pot is legal for both medical and recreational use.
 
That's Benzo though. Wouldn't the same rules apply?? :unsure:
While I was waiting for my Dr to Rx an alternative for my Norco, I took a medication called cyclobenzaprine. Gotta be the same thing, right? Or very similar? My doc Rx'ed it early this year, when we were looking for an alternative to my opioid.

I do not like cyclobenzaprine at all. It makes me clumsy, sleepy, and dopey ( 3 out of 7 🤪 ).

I did finally get a month supply of Oxycodone a couple days ago, and the next day I got a 3 month supply of Gabapentin.

I'm only taking the Oxy right now. It's working fairly well for my back pain, and really well for the Restless Leg, but it makes me feel a bit Foggy for about an hour or so.

The Gabapentin is 300mg, 3X/day. My Dr tried me on Gabapentin before, and if I remember right, 300mg was too much so I asked her to lower the dosage to 100mg. It still made me feel Rummy, and it didn't help much with the pain.

Unfortunately, they're capsules, so I can't cut them in half or thirds. I'll give them another try, after the Oxy is gone, and if they make me feel Lousy, I'll let my Dr know. (6 out of 7! :p)
 
While I was waiting for my Dr to Rx an alternative for my Norco, I took a medication called cyclobenzaprine. Gotta be the same thing, right? Or very similar? My doc Rx'ed it early this year, when we were looking for an alternative to my opioid.

I do not like cyclobenzaprine at all. It makes me clumsy, sleepy, and dopey ( 3 out of 7 🤪 ).

I did finally get a month supply of Oxycodone a couple days ago, and the next day I got a 3 month supply of Gabapentin.

I'm only taking the Oxy right now. It's working fairly well for my back pain, and really well for the Restless Leg, but it makes me feel a bit Foggy for about an hour or so.

The Gabapentin is 300mg, 3X/day. My Dr tried me on Gabapentin before, and if I remember right, 300mg was too much so I asked her to lower the dosage to 100mg. It still made me feel Rummy, and it didn't help much with the pain.

Unfortunately, they're capsules, so I can't cut them in half or thirds. I'll give them another try, after the Oxy is gone, and if they make me feel Lousy, I'll let my Dr know. (6 out of 7! :p)
You could always buy empty capsules online and transfer a portion of your prescription med cap into the empty cap and see how that works right? You've got the time. Not to be sassy cuz I understand you're in pain and need your life made easier right now. I think this could work for you. :unsure::)
 
I had 2 spinal surgeries in 2014 (cervical and lumbar). They installed 2 cages (rods and bolts) and gave me 90 count of 10 mg oxycodone with refills. I was very careful and got off it without a problem. I still haven't found a pain reliever for all my general aches and pains. Sitting helps a lot.
 
I had 2 spinal surgeries in 2014 (cervical and lumbar). They installed 2 cages (rods and bolts) and gave me 90 count of 10 mg oxycodone with refills. I was very careful and got off it without a problem. I still haven't found a pain reliever for all my general aches and pains. Sitting helps a lot.
Yeah, when I'm doing chores I have to sit down every 30 to 60 minutes. I can usually get back to work after just 15-20 minutes, but, you know, there's no rush. ;)

I do 20-30 minutes of deep meditation a couple times a day, too, which helps a lot for an hour or two.
 
I can't get my pain med Rx filled because the DEA cut supplies. My pharmacy said they might have some around the end of January. Meanwhile I'll have to refrain from doing all but a couple of my morning exercises, taking walks, certain housekeeping chores, shopping, cooking, and doing wood projects.

Besides a bum spine, I have RLS, restless leg syndrome. My opiod pain med stopped that by a solid 95%. Last night the RLS kept me awake. It literally kicked off about every hour....in other words, I slept about an hour at a time, then was up for an hour or 2, then went back to bed to try sleeping again.

I read that Gabapentin helps with RLS. I've taken it before but I don't remember if it helped or not....which means it probly did. If it didn't, I think I'd remember that. I do remember it didn't relieve my my back pain. But I'm gonna ask my Dr to Rx it.

DEA Finalizes Cuts in 2023 Opioid Supply — Pain News Network
Here is another surprising source of pain control …
“Antidepressants: Another weapon against chronic pain
Antidepressants are a mainstay in the treatment of many chronic pain conditions — even when depression isn't a factor.”
Antidepressants: Another weapon against chronic pain
 
Here is another surprising source of pain control …
“Antidepressants: Another weapon against chronic pain
Antidepressants are a mainstay in the treatment of many chronic pain conditions — even when depression isn't a factor.”
Antidepressants: Another weapon against chronic pain
Yes, those work really well for some people. My Dr tried me on a couple of antidepressants, but they didn't work for me.

I suppose it depends on the type of pain and maybe a person's brain as well. A recent study says everybody's brain is different; the number of neurons, the amount of hormones...the general chemistry. Maybe my brain just can't handle antidepressants. They have no effect on my pain; they just make me drunk and stupid.
 
Doctors who prescribe opioids and patients who are prescribed opioids are under scrutiny by the DEA. For the past few years, annually, I'm asked to sign an agreement with my prescribing physician saying that I understand the scrutiny and I'll follow the few rules listed in the agreement. That agreement was created by the DEA. A digital copy of it is in a database, no doubt.

I don't remember if one of the rules is "Do not procure opioids from outside the US"...I doubt it. I just don't want to cause a problem for myself or my doctor, is all. If this planned shortage lasts over 3 or 4 months, I will consider it.
PA has the same protocol, but I know of patients that make the 6 hour drive to Canada to obtain their supply of Hydrocodone. I never fully read the document that the patient signs and when I was on the active force, we had no issues with where it was purchased. It wasn’t until a few years later, maybe around 2012 or later that the crackdown began.

It has really become messed up now as to how it can be obtained and the amount a patient is permitted. It wasn’t that long ago, I would pick people up with all kinds of opiates in their pockets. Hydrocodone, Percocet, Dilaudid, Oxycodone and then there were harder opiates than these few that some people had stuffed in their pockets.
 
but I know of patients that make the 6 hour drive to Canada to obtain their supply of Hydrocodone.
Do they still do this? Canada has cracked down on opiates too so it’s surprising folks from another country can just come and get a supply, even with a prescription.
 
PA has the same protocol, but I know of patients that make the 6 hour drive to Canada to obtain their supply of Hydrocodone. I never fully read the document that the patient signs and when I was on the active force, we had no issues with where it was purchased. It wasn’t until a few years later, maybe around 2012 or later that the crackdown began.

It has really become messed up now as to how it can be obtained and the amount a patient is permitted. It wasn’t that long ago, I would pick people up with all kinds of opiates in their pockets. Hydrocodone, Percocet, Dilaudid, Oxycodone and then there were harder opiates than these few that some people had stuffed in their pockets.
There's no way I could afford to fly to Canada multiple times, and I sure can't drive there. I try to limit auto trips to no more than 45min.

The DEA says the latest cut is because of an increase in opioid-related fatalities. But maybe the ingredients were purer a decade ago, and I wonder if the death data lumps in Fentanyl ODs and suicides after the previous cuts. I don't see how cutting availability solves anything.
 


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