Finally almost got a diagnosis

I'm doing OK - better than most of the medical professionals expected me to be. I am still able to function quite well, even though I do need help with more things these days.

My help has been upgraded further and if I need it, I can have help for 9 - 12 hours per week. I have one lovely lady who takes me out once a fortnight - for a picnic, to do some shopping or whatever else I might like to do.

I've been busy getting my Power of Attorney, Guardianship and Will updated. I have an Advanced Care Directive in place. DNR has been registered with my doctor, hospital and ambulance station.

Medications are continually being reviewed so that I experience very little pain. Being unable to sleep for more than 4 hours at a time gets me down a bit, but I've learnt to sleep whenever I can - day or night and that's working out OK.

My son now visits once a month and has accepted that I have incurable cancer.

The cancer has spread to some lymph nodes and is expected to spread further.
 

Wonderful to hear from you grannyjo, and to know you're coping well and that also things are going better than you'd hoped by this stage, and you're still able to get out ..thank God for that at least. I'm so sorry the cancer has spread to some Lymph nodes.. what is your doctors' view on that ?
 
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grannyjo said:
I'm doing OK - better than most of the medical professionals expected me to be. I am still able to function quite well, even though I do need help with more things these days.

My help has been upgraded further and if I need it, I can have help for 9 - 12 hours per week. I have one lovely lady who takes me out once a fortnight - for a picnic, to do some shopping or whatever else I might like to do.

I've been busy getting my Power of Attorney, Guardianship and Will updated. I have an Advanced Care Directive in place. DNR has been registered with my doctor, hospital and ambulance station.

Medications are continually being reviewed so that I experience very little pain. Being unable to sleep for more than 4 hours at a time gets me down a bit, but I've learnt to sleep whenever I can - day or night and that's working out OK.

My son now visits once a month and has accepted that I have incurable cancer.

The cancer has spread to some lymph nodes and is expected to spread further.
Click to expand...
Do you also have Hodgkins?
 

You have the help you need, so that's good. Sorry to hear about it spreading to the lymph nodes. Aside from not getting a good sleep, it sounds like you are doing well with pain meds. I know it's hard for both you and your son. Thank you for responding to this thread. Many people here care about you ❤
 
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