My son Joey and his COVID-19 journey

I agree of course you are right, all about Joey and his foods, etc.
And you are right also, that, at this point, you cannot do everything you would like to do for him.

Is it possible that he would eat one egg, first, in order to then be rewarded with (a smaller amount) of the Apple Jacks?
If so, then possibly, if they won't prep it, then you could hard-boil eggs, to be used once or twice a day, in that way?
Though I know, it might not work with dear Joey, and also might not be easy, to get them to follow-thru on it.

The oatmeal with fruit is another good idea too, especially with the fruit visible on top, for him to see it, such as applesauce.
And again, he could be given a small portion of the Apple Jacks for rewards, if that made it easier for him and the staff, to actually do.

Oatmeal is another thing that you could possibly fix, and then they just microwave warm it a bit.

Just ideas.
I understand it is a big, difficult problem, without any easy or quick fixes, for sure!!
 

Kaila said:
I agree of course you are right, all about Joey and his foods, etc.
And you are right also, that, at this point, you cannot do everything you would like to do for him.

Is it possible that he would eat one egg, first, in order to then be rewarded with (a smaller amount) of the Apple Jacks?
If so, then possibly, if they won't prep it, then you could hard-boil eggs, to be used once or twice a day, in that way?
Though I know, it might not work with dear Joey, and also might not be easy, to get them to follow-thru on it.

The oatmeal with fruit is another good idea too, especially with the fruit visible on top, for him to see it, such as applesauce.
And again, he could be given a small portion of the Apple Jacks for rewards, if that made it easier for him and the staff, to actually do.

Oatmeal is another thing that you could possibly fix, and then they just microwave warm it a bit.

Just ideas.
I understand it is a big, difficult problem, without any easy or quick fixes, for sure!!
Click to expand...
I have contacted the social worker to set up a meeting and a plan.
 
Oh gosh, @Aneeda72
I just read again (my 3rd time:rolleyes: )
your post, above,
and I see that you did include in it , the very same or similar idea,
that I suggested, about negotiating, the egg/ appleJacks with him.....
 

Aneeda,, do you have someone who will become his advocate when you are not longer on earth?

Perhaps talk to your son that was with Joey at the hosptial to get different ideas on handling the situation.

Wondering why there aren't more nutritionist working at care homes or offering services to the public.
So many actors, models or wanta be models who think they are overweight,,might spend money for that service.
 
I had an interesting talk with the group home manager yesterday.

They have not been cooking, instead they are ordering food in cause it is “safer” 😂. It’s not, of course. This is the reason for the high carb diet pizza etc. I told her they could order from subway and get much healthy food like salads etc. She said they might start making sandwich’s at home.

Joey was able to get out of his room, go to the refrigerator, and find his frozen egg sandwiches that I bought him. They are 34% protein and 1% carb. I told him, and her, he could have a carb with them, piece toast, bagel, small bowl sweet cereal, etc.

I asked why he was out of his room and she said they make him put on gloves and mask. He doesn’t need gloves I said. Then she dropped a bomb. Two other clients in the home have Covid. 😮. They are vaccinated as well. She says they got Covid from walking through the house and touching the door knobs and such. I did not disagree.

But that’s not how they got it. If they got it from Joey, and it’s assumed they did although they work at the same work place, they got it from the air in the house. None of them wore masks in their rooms. Delta is very contagious as an airborne disease. Trapped in the house together, no open windows, all breathing the same air 24/7. That’s how they caught it.

I also addressed the question of where Joey’s things are. Lots of his things are missing, most of his clothes are gone, and even a couple of pieces of furniture are gone. His dresser is broken. His room was rearranged and has to be put back as I was before. 🤦🏻‍♀️ Once he is well, I will have to deal with all of this and replace his glasses and buy a new dresser.

Then she says he has over three hampers full of dirty laundry. Why they have not washed it, is beyond me. We will have to pick it up and get it washed here. Staff, apparently, is doing nothing at all. Nice job, wish I had it.

I mentioned I found the weekend aide sitting on the sofa, doing nothing but talking on her cell phone with no mask on. 😮. She should not be surprised if she gets delta. The group home manager says that’s not supposed to happen. -no mask. 😂😂. Whatever.

I am so frustrated.

But, Joey says he is improving and I think he is. His oxygen is supposed to come off on Thursday and we will see how he does on room air. He sees the doctor on the 9th, and gets retested to see if the covid is all gone. Hopefully, it is. Then we will work on his losing weight and finding what’s missing from his things. And get the sheriff involved if necessary.
 
Pleased to hear Joey is improving...Now about group homes hate them, Rescued a veteran from one, when taken to the medical care they wanted to know when he broke his leg, they abuse them...So they are the pits, they lose things and steal
 
Tish said:
@Aneeda72 I can imagine your frustration is through the roof by now.
It really does sound like none of the workers gives a damn.
Click to expand...
Yes, I was going to email the group today but I am so 🤬🤬🤬, I did not do it. 🤦🏻‍♀️ I need to get a little “cooler” in my temperament. Imagine how bad it is for those clients whose parents show no interest at all after their adult children enter these places.

Or the parents of adult children who drop the elderly into nursing homes, and never or rarely check on them. Life becomes horrific for those clients.
 
At least you know that you bring Joey so many joys into his life, by all of the things you do for him, and you answer him when he needs to talk to you. That phone, etc..... :)
 
Aneeda, I've read through your thread and I'm so sorry about your experiences with the group home. I am, however, happy to hear that Joey is improving. We are all hoping that Joey's oxygen comes off on Thursday as promised. Please keep us updated.
 
Aneeda72 said:
Yes, I was going to email the group today but I am so 🤬🤬🤬, I did not do it. 🤦🏻‍♀️ I need to get a little “cooler” in my temperament. Imagine how bad it is for those clients whose parents show no interest at all after their adult children enter these places.

Or the parents of adult children who drop the elderly into nursing homes, and never or rarely check on them. Life becomes horrific for those clients.
Click to expand...
Absolutely!
 
Kaila said:
Is Joey less congested? And how did his Thursday check-up go?
Click to expand...
Thanks for asking. Joey sounded like his old self yesterday so I am starting to think that he will be fine. He sees the doctor on the 9th, then we will know. I contacted the director of the group home with my concerns and she is supposed to set up a meeting.
 
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Shero said:
What happened Aneeda?
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He said Joey doesn’t need heart surgery at this time. Joey got real excited and happy. 😭😭. He did not understand what he said next. He said his lungs were extremely damaged from Covid so even if he needed surgery now, he could not have it. He would die. 😭😭

He said we had to wait 6 months for his lungs to heal and then see where he was. He said that his lungs would be badly scarred, even after healing. He said if he gets chest pain to take him to the ER, cause it might be a heart attack, but there could be no surgery. He implied he might need to have portions of his lungs removed.

I just cannot stand the possibility that another son might die before I do. Life can be so cruel. 🥺😭😭. It’s so hard to wrap my mind around. I am so sad.
 
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