My son Joey and his COVID-19 journey

Aneeda72 said:
He said Joey doesn’t need heart surgery at this time. Joey got real excited and happy. 😭😭. He did not understand what he said next. He said his lungs were extremely damaged from Covid so even if he needed surgery now, he could not have it. He would die. 😭😭

He said we had to wait 6 months for his lungs to heal and then see where he was. He said that his lungs would be badly scarred, even after healing. He said if he gets chest pain to take him to the ER, cause it might be a heart attack, but there could be no surgery. He implied he might need to have portions of his lungs removed.

I just cannot stand the possibility that another son might die before I do. Life can be so cruel. 🥺😭😭. It’s so hard to wrap my mind around. I am so sad.
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Oh ma cherie, my heart breaks for you. Stay strong which is hard to do now but you must. You have been so brave. My prayers are with you and Joey. 🙏🙏🙏
God Bless.
 
Aneeda72 said:
He said Joey doesn’t need heart surgery at this time. Joey got real excited and happy. 😭😭. He did not understand what he said next. He said his lungs were extremely damaged from Covid so even if he needed surgery now, he could not have it. He would die. 😭😭

He said we had to wait 6 months for his lungs to heal and then see where he was. He said that his lungs would be badly scarred, even after healing. He said if he gets chest pain to take him to the ER, cause it might be a heart attack, but there could be no surgery. He implied he might need to have portions of his lungs removed.

I just cannot stand the possibility that another son might die before I do. Life can be so cruel. 🥺😭😭. It’s so hard to wrap my mind around. I am so sad.
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*HUGS* so sorry! i just lost my mom the 2nd to covid. if u need to talk let me know.
 
Thanks everyone for your concern for Joey and myself. It was a rough evening yesterday as I told his older brother and sister. 😢. With such injured lungs, a cold could be life threatening. It also explains the bad cough that he has.

We have decided to let him live life as “normal“-not trying to over cautious over where he goes or what he does. It is never about how long you live, but about the quality of life you have; and we want his life to be good. Whether it turns out to be a few months or several years, we will impose no restrictions on him; although I’d like to put him in a complete hazmat suit. 🤦🏻‍♀️

Even without Covid there was never any guarantees for a long life for any of us.

Anyway, he LOVES his new group home. We are going to get him curtains for his room, and more food 😂. Some new furniture as some of his furniture is worn and too big for his room. Since the group home people agreed to buy a second refrigerator for the group home, we have decided to buy a stand up garage freezer as well for it instead of the small box freezer we provided.
 
MarciKS said:
*HUGS* so sorry! i just lost my mom the 2nd to covid. if u need to talk let me know.
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I am sorry to hear this and so sorry for your loss.

Covid is so awful-even when it doesn’t take a life; it can impact someone’s life forever. An “unfair” disease for sure. My oldest son was so upset and said “if he gets Covid again, he will die”. ☹️

And with the new extremely contagious variant that is a possibly. And with his damaged lungs a simple cold, the flu, pneumonia, or any respiratory disease could be horrific for him. But there is nothing to do for it; but pretend, to him, all is well.

It might be a blessing that he doesn’t understand.
 
So wonderful Aneeda, living with the unknown is hard, but I just focus on the love. Joey is so blessed to have you, never forget that.

No matter what you are told, hope is always there. I have been given bad news, yet here I am completing another year soon. Love is forever, Joey has that, you do as well....
 
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