Trigeminal Neuralgia

Good luck tomorrow Jilly. :love_heart: I hope you get some answers and somebody give you some much needed relief.
 

Best of luck, Jill; there is something to help you out there...just need to find the one for you.
 
All the best, Jill. I had a scan a couple of weeks back and, same as Rainee, a support cushion was put under my knees which did help.
 

So sorry to see you are suffering with Trigeminal neuralgia, Jilly, and I hope you find some relief from it soon, will be thinking of you re the MRI .
 
Thanks for your kind words girls, i have just got home from having it,i was there 4 hours as i got there a bit early, the MRI wasn't very pleasant as i was right in the tunnel for an hour and had a cage thing on my head, just when i thought it was finished they injected dye into my veins so the nerves in my brain showed up, i had to keep trying to think of other things to get my mind off it, i had an itchy ear at one stage it drove me mad. The nurses there called my MRI a Marathon. Then i had to have the Doppler ultrasound that is weird listening to the sound of your blood it's a loud swishing noise.
So now i wait and see what it shows as to what is done about the TN
 
Jilly, that really sounds like a marathon and you did very well to keep your mind off it.
Isn't it strange how you get these itches when you know you can't scratch.:grrr:
I'm just so glad for you that it's all over and now, hopefully, they can just get you relatively pain free.
I hope everything goes well for you.:bighug:
 
Hoping the results of the MRI are useful Jilly, and they can do something to help you through all this. When will you have the results?
 
Got the results and all is normal, so back to square one, i am researching online and found a good site last night that suggests a few natural things, i just wish i could stop the excessive sweating on my head and right side i end up soaked. Would love some relief from the pain, i can't keep taking meds to stop it, i am weaning myself off the Anti convulsant tablets as they make me feel like a zombie and all i want to do is sleep
 
Jillaroo said:
Got the results and all is normal, so back to square one, i am researching online and found a good site last night that suggests a few natural things, i just wish i could stop the excessive sweating on my head and right side i end up soaked. Would love some relief from the pain, i can't keep taking meds to stop it, i am weaning myself off the Anti convulsant tablets as they make me feel like a zombie and all i want to do is sleep
Click to expand...

Hi Jilly , So good to hear your news.. as you say back to square one.. so maybe its the medications that are causing it.. so keep us informed and take lots of care of yourself ok.. and take it slowly one day at a time...
 
Jillaroo said:
Got the results and all is normal, so back to square one, i am researching online and found a good site last night that suggests a few natural things, i just wish i could stop the excessive sweating on my head and right side i end up soaked. Would love some relief from the pain, i can't keep taking meds to stop it, i am weaning myself off the Anti convulsant tablets as they make me feel like a zombie and all i want to do is sleep
Click to expand...

Jilly, If your results came back normal, does the doctor have an explanation for the causes of the sweating and the pain you're experiencing?
It's fine to prescribe pain meds for relief but there has to be a reason why it's happening and treat it if possible.
Take care and keep us up to date.:bighug:
 
Hi Casper i am doing some research at the moment, i have found a good site which is a forum so will be asking questions there, i notice they mentioned B12 and Omega 3 is good, i will read some more and see if anyone else has the sweating problem with their ailment, i need answers on that because it is driving me mad, while sitting here it is dripping off the right side of me.
They also talked about the tablet i am weaning myself off and they too say it makes them very sleepy, for me it's not on due to me living on my own i need to have my wits about me.
 
Hi Jilly, You're doing the right thing weaning yourself off those tablets, they must be powerful. Not a good idea if you're alone, you wouldn't want to chance driving anywhere either, too risky.
I've never heard of anything like your symptoms. I'm not a person who sweats very much at all and to be like that must be shocking for you. It would be great if you could go the natural way and control this but it's not always possible to do so. It's worth a try though.
I really feel for you Jilly and hope you stumble across something to give you some relief.....fingers crossed.:fingerscrossed:

Thinking of you. Keep us posted.
Hugs. :rose:
 
:thankyou:Thanks Casper it is driving me mad the sweating, when i am out it is very embarrassing always mopping myself, i go through about 1 inch of large tissues each time i'm out, and top it off with the pain in the head well i have had enough.
 
Just a thought Jill; have you tried evening primrose oil for the sweating?
used for the menopause sometimes....or even red clover?
 
Red clover has been used for sweats, (I used it for a while on the recommendation of my doctor; no HRT!)

Is quite expensive, but only one tablet a day, and you don't have to take it every day if you don't want to; I took it for about 3 weeks then laid off for three or four weeks.

It comes in one strength, over here....close to evening primrose oil on the shelf....
just an idea, slightly out of the box...
 
Jilly first of all I want to wish you a Happy belated Birthday, and also I hope you soon find out what is causing your Trigeminal Neuralgia,it must be very painful.
 

You must log in or register to reply here.

Back
Top