Trigeminal Neuralgia

Vivjen said:
Red clover has been used for sweats, (I used it for a while on the recommendation of my doctor; no HRT!)

Is quite expensive, but only one tablet a day, and you don't have to take it every day if you don't want to; I took it for about 3 weeks then laid off for three or four weeks.

It comes in one strength, over here....close to evening primrose oil on the shelf....
just an idea, slightly out of the box...
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I used Red Clover throughout my menopause for hot flashes and night sweats. Here in the US it is very inexpensive, and available at health/vitamin stores. It helped a lot, without the side effects of HRT. http://www.natmedtalk.com/wiki/Red_Clover
 
Jillaroo said:
I have just been diagnosed with this after suffering from it for over 2 years, i finally have a Neurologist who is doing some tests to try and work out why i am still suffering, i have to have a MRI tuesday where i lay there for 75 minutes while they check the nerve in my head , spine and neck, my bad back will hate the concrete type bed i have to lay on. It has him concerned as i am sweating like mad on the right side where i have it, i put a new top on and 5 minutes later it is soaking on the right side, i am washing so many tops as i go through 2-3 each day. He has put me on Tegretol and i am finding they are knocking me around, i feel a bit like a Zombie, not looking forward to tomorrow i start taking 2 a day.
Went into town to get a blood test as the radiologist needs to know what my kidneys are like, my veins collapse she tried twice and no go, so i am going to the girl here where i live hopefully she can get some blood out.
Sat up due to the massive headache last night, it was a weird one, have to find out today if i can take pain killers while taking this Tegretol, so as you can see i am a misery guts.
Has anyone here had this or know of anyone who has.:coffeelaugh:
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Hi Jill, I am so sorry you are going through this. Sounds you are staying in pretty good spirits considering. Glad you shared it here because for me it always seems a bit less scarey when I let other know so we can all talk about it. Maybe someone here has something like it too, that is helpful, to know someone understands at least. big hug, Denise
 

Vivjen said:
Just a thought Jill; have you tried evening primrose oil for the sweating?
used for the menopause sometimes....or even red clover?
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Also lots of water. You probably already do that. Oh I hope they find some answers with the bloodtests and MRI.
 
To all.....as Seabreeze said, red clover, or isoflavines, are recommended for menopausal symptoms, especially hot flushes/flashes....and I see no reason why they can't be used for any other type of sweating.....
a natural product; better than HRT IMO; as long as symptoms are not too severe.

Just trying to think out of the box for Jill; I suspect she will try something 'herbal' with very little risk...
 
Hi Jilly. hope you find some relief from the head sweating..and also your pain..I am going to start
on the rose hip vital capsules tomorrow for pain they say they help 90% of the pain so worth a try
and not drugs .. also for you drink at least one cup of sage tea a day.. Sage tea is another home remedy for profuse sweating.. Sage tea is also great for reducing stress levels as you would be a little stressed over your problems.. , you won`t see results immediately but in at least 3 weeks you should also my daughter said to tell you to get some limes.. cut in half and rub a half over your head , leave it for half an hr then wash out it helps she says.. and if that helps you can get yourself a lime tree and grow in a tub thats what she has.. but these are just advices not telling you to do them ... hope all works out well for you keep us posted..
 
Hi Rainee, Thanks for all the info do you use fresh sage leaves or a bought tea, that's interesting about the limes, i will give that a try.
I hope your health is better than it was, hope the rose hip helps with your pain, something we both could do without.
 
Sorry for the pain...
As far as understanding the ailment, it looks like the Wiki article has a comprehensive overview, along with a very long list of reasons for and treatments of.
http://en.wikipedia.org/wiki/Trigeminal_neuralgia

Especially unusual is the "tri" part of the nerve, which transmits pressure, temperature and pain. It looks as if one of the many reasons for the problem is the loss of the myelin sheath that covers and protects the nerve.
Lots of info about many possibilities including associated diseases, dental and jaw related insults (injuries or abnormal jaw teeth alignment).

Nerve pain is strange... the origin may be far from the "hurt". Not relevant to your case, but an example... I have peripheral neuropathy, which was misdiagnosed as carpal tunnel... after an operation for that, no improvement... The next suspect was diabetes, but that was also, not the case. Finallly determined to be an bilateral, both sides of the body (both hands)... nerve problem, for which there is no apparent cure. The nerve causing the problem is likely located somewhere in the spinal column, accounting for the both sides problem. Fortunately not debilitating except for no pressure sensitivity in the hands... (feels like you're wearing a heavy glove). The good part, in my case, is that the initial pain associated with the problem is now tolerable, and gabapentin (Neurontin) takes care of that when it gets bad.. I know that has no relation to your situation, except that eventually we learn to deal with health problems, and can consciously learn and be able to do whatever works best, when a pain attack occurs.

I wish you the best outcome.
 
Tom Young said:
I have peripheral neuropathy, which was misdiagnosed as carpal tunnel... after an operation for that, no improvement... The next suspect was diabetes, but that was also, not the case.
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Typically a thyroid test should be done before carpal tunnel surgery; there are a lot of folks with thyroid problems that undergo carpal tunnel surgery and alas, no improvement.
 
Tom Young said:
Sorry for the pain...
As far as understanding the ailment, it looks like the Wiki article has a comprehensive overview, along with a very long list of reasons for and treatments of.
http://en.wikipedia.org/wiki/Trigeminal_neuralgia

Especially unusual is the "tri" part of the nerve, which transmits pressure, temperature and pain. It looks as if one of the many reasons for the problem is the loss of the myelin sheath that covers and protects the nerve.
Lots of info about many possibilities including associated diseases, dental and jaw related insults (injuries or abnormal jaw teeth alignment).

Nerve pain is strange... the origin may be far from the "hurt". Not relevant to your case, but an example... I have peripheral neuropathy, which was misdiagnosed as carpal tunnel... after an operation for that, no improvement... The next suspect was diabetes, but that was also, not the case. Finallly determined to be an bilateral, both sides of the body (both hands)... nerve problem, for which there is no apparent cure. The nerve causing the problem is likely located somewhere in the spinal column, accounting for the both sides problem. Fortunately not debilitating except for no pressure sensitivity in the hands... (feels like you're wearing a heavy glove). The good part, in my case, is that the initial pain associated with the problem is now tolerable, and gabapentin (Neurontin) takes care of that when it gets bad.. I know that has no relation to your situation, except that eventually we learn to deal with health problems, and can consciously learn and be able to do whatever works best, when a pain attack occurs.

I wish you the best outcome.
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I'm sorry to hear about your condition, it's very frustrating isn't it i have read about neurontin as the tegretol is awful, i have been suffering from this for 2 1/2 years now so you get a bit immune to the pain sometimes, then it charges in and let's you know it's still there, i was reading on a forum some women have been suffering really badly from TN for 10 years or more , i do think it's about time they came up with a cure .
 
I just finished reading about his ailment Jill. I can't tell you how much I felt for you when reading the article. My sister's friend has it as well, and I had never read in depth about it until Seabreezes post brought this to the top of the latest posts today. I don't think I have read about any ailment in a long time, that sounds as awful as this. I know there is no way I can understand how it must be to have it.

I am so sorry you have to deal with this. I'm sure you have read all the "to do's" if you have it, but if not, and you want to know about the article I read, here it is:http://www.wikihow.com/Alleviate-Pain-Caused-by-Trigeminal-Neuralgia

Not a clue if anything mentioned in this article would help you. It might be worth a try, and it also might be full of things you already have tried, Denise

[video]http://www.wikihow.com/Alleviate-Pain-Caused-by-Trigeminal-Neuralgia[/video]
 

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