Diagnosed with Parkinson's Disease

oscash said:
Hollydolly: My father was diagnosed with Parkinson Disease when he was in his early 70's. He had tremors, a stoop walking and endless rolling of the fingers. He eventually was told it was Parkinsons with a blood test. He suffered with it for 18 years and ended up in a nursing home. He lost his ability to speak, and it was a blessing when he did pass away.
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yes my father in his early 70's too... he died at 82 caused by a mutitiude of mini strokes, brought on by the PD...
 
hollydolly said:
You've not actually been diagnosed with it yet, have you Pepper ?
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Yes. I was diagnosed. Of course I will go for second opinion.

I have potential good news:
My pharmacist, who I've known for 20 years said, and I quote "Don't quote me, but definitely get a second opinion. He's a shitty doctor, though I shouldn't say that, I'm telling the truth. Between us."

That gives me some hope.
 

Pepper said:
Yes. I was diagnosed. Of course I will go for second opinion.

I have potential good news:
My pharmacist, who I've known for 20 years said, and I quote "Don't quote me, but definitely get a second opinion. He's a shitty doctor, though I shouldn't say that, I'm telling the truth. Between us."

That gives me some hope.
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I thought you said you hadn't been until you see the second doctor....ok...... the thing is if the first doctor diagnosed you correctly.., then he would have started you on some kind of regimen...


let's hope your pharmacist is correct and the doctor has got it wrong..
 
smiley said:
keep pluggin away but wot ya gonna say to a second doc if he/she asks have you seen any other docs?
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I must, as I have paperwork I need to show and have explained to me. If I have Parkinson's I will seek a better doctor and better care elsewhere. I was very rushed, which was psychologically damaging for me. I was able to calm down a bit yesterday. I'm my own worst enemy, my dad said, and he was right.
 
Pepper said:
I must, as I have paperwork I need to show and have explained to me. If I have Parkinson's I will seek a better doctor and better care elsewhere. I was very rushed, which was psychologically damaging for me. I was able to calm down a bit yesterday. I'm my own worst enemy, my dad said, and he was right.
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well as long as you've a swag of money you can see as many docs as you want I guess??
 
Pepper, don't worry all the rest of us will get something bad. So far as I know, EVERYONE dies in the end. Even if we live to a very old age like me at 90, I have very bad arthritis and have trouble walking. My abdomen has a huge pot belly and I have to open my pants when I sit down. Plus, facing the end of life has even more uncontrolled suffering.

My solution is to accept EVERYTHING bad that happens and just try to enjoy yourself doing something interesting every day. For me I play Civilization VI on my PC and all my pain and suffering go away while I manage a nation from the stone age to the nuclear age.
 
Mitch86 said:
Pepper, don't worry all the rest of us will get something bad. So far as I know, EVERYONE dies in the end. Even if we live to a very old age like me at 90, I have very bad arthritis and have trouble walking. My abdomen has a huge pot belly and I have to open my pants when I sit down. Plus, facing the end of life has even more uncontrolled suffering.

My solution is to accept EVERYTHING bad that happens and just try to enjoy yourself doing something interesting every day. For me I play Civilization VI on my PC and all my pain and suffering go away while I manage a nation from the stone age to the nuclear age.
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I used to wonder why old people bought pants that were so baggy in the seat. These days I understand the reason for that.
hollydolly said:
yes my father in his early 70's too... he died at 82 caused by a mutitiude of mini strokes, brought on by the PD...
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My father died in his 80's from lots of mini-strokes, and he didn't have PD. It's like Mitch says, all of us will get something bad and PD being such a slow mover, we might have it and die of something else.

I bet lots of times even the doctor doesn't know exactly what caused our final demise. I read somewhere that quite often people have had a big bowl of ice cream before their heart attacks. I expect it took many years before some doctor noticed that correlation and even now we aren't warned about it. They're just now noticing how often people have strokes after a bout of anger over something.

I need to give up ice-cream and playing Hearts.
 
Della said:
I used to wonder why old people bought pants that were so baggy in the seat. These days I understand the reason for that.


My father died in his 80's from lots of mini-strokes, and he didn't have PD. It's like Mitch says, all of us will get something bad and PD being such a slow mover, we might have it and die of something else.

I bet lots of times even the doctor doesn't know exactly what caused our final demise. I read somewhere that quite often people have had a big bowl of ice cream before their heart attacks. I expect it took many years before some doctor noticed that correlation and even now we aren't warned about it. They're just now noticing how often people have strokes after a bout of anger over something.

I need to give up ice-cream and playing Hearts.
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except mini strokes are very much a part of Parkinsons disease..no-one dies from PD they die from the effects of PD, which is very often strokes...
 
Pepper said:
Just wanted to let you all know that I am facing yet another health challenge. Was put on Rytary. Am not taking to it well. Have appointment for a second opinion, but since it's with the Parkinson's Institute it is not until September. May find a crappier place for a second opinion so I can get it faster.

I am extremely depressed, which I understand makes it worse.

Hence the unbearable shaking.
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I'm so sorry you have to deal with this. Turns out there is a spectrum of related conditions classified under Parkinson's. Sounds like you're doing what you can and I hope they can prevent it's advancing. Who knows what they may already have found? Hopefully you'll find someone really good to help you with it.

My wife has the form that is considered the least troublesome, Pure Autonomic Failure. It too progresses and a surer diagnosis depends on which other better known form it becomes. But it is no picnic having to monitor ones BP constantly and medicate accordingly.

I know you don't put much store in prayers and I don't practice it anyway but you'll be in my thoughts if that is any comfort.
 
Pepper…my heart goes out to you. I know you have suffered from tremors for some time…and been frightened of them. Maybe you will get a different diagnosis from another physician. I sure hope so. But if you do not take heart in the knowledge that with a diagnosis a physician can better come up with a treatment plan. Thinking of you…
 
Pepper said:
My estate! :ROFLMAO: :ROFLMAO: :ROFLMAO: :ROFLMAO: :ROFLMAO: :ROFLMAO: :ROFLMAO: :ROFLMAO: :ROFLMAO: :ROFLMAO: :ROFLMAO: :ROFLMAO: :ROFLMAO: :ROFLMAO: :ROFLMAO: :ROFLMAO: :ROFLMAO:
Thank you! That made me laugh!
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Sometimes laughter is the best medicine.

I wish you well as you face this challenge. I have no advice to offer other than carpe diem. As much as is possible try to live in the moment, appreciating whatever uplifting thoughts and events that come your way.

Laugh, and laugh often.

Pepper, talk to us when laughter doesn't come easily because there are many here who understand Parkinsons and who can relate to your emotional rollercoaster ride.
 
Warrigal said:
Sometimes laughter is the best medicine.

I wish you well as you face this challenge. I have no advice to offer other than carpe diem. As much as is possible try to live in the moment, appreciating whatever uplifting thoughts and events that come your way.

Laugh, and laugh often.

Pepper, talk to us when laughter doesn't come easily because there are many here who understand Parkinsons and who can relate to your emotional rollercoaster ride.
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I have PD and I agree its better, IF POSSIBLE, to laugh when you can.
Toward that end I hereby offer my fav PD joke ...
pd joke.jpg
 
Thank you all for your best wishes. I am still absorbing diagnosis. Takes me a long time to get used to things. Am going to try med Rytary tonight. I took it once and I didn't feel well, but I'll try it again. The shaking really makes me so nervous.
@OregonGuy I loved that, it made me laugh, thank you.
 
Hey @Pepper. I hope you can get a definitive diagnosis, whatever it is, so you can proceed with a treatment plan. Uncertainty is one of life's most difficult circumstances.

If it were me in your shoes, I'd get an appointment with another doctor ASAP. Waiting three months will throw your anxiety into high gear. Keep the Sept appt. with the Parkinson's Institute - why not go to another doc in between. So what if it's yet another medical appointment on your calendar? Better to know than to worry and wonder...

Hoping for the best for you. ♥
 
Second opinion is a great idea. If positive for Parkinson’s, the next move will be to get the best possible treatments from the best possible clinics or doctors.
 
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