End of my road

Traveler said:
My order of L-Glutamine has finally arrived from Amazon. Nothing else has worked, so I sure hope this does. One thing I have decided on: To hell with the doctors. All they want to do is run expensive tests but NOT ONE of them has taken the time to sit down with me and discuss food as a possible cause of my problem.
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I hope it works for you. Doctors never consider nutrition for help, but food is medicine for me. There's lots of info about it on Google and youtube. I hope you find a solution. Ginger tea can settle a stomach as can Peppermint. Once your stomach is soothed, maybe you'll be able to keep other foods inside you. How about eating poultry? White potatoes? I'd steer clear of fruits and veggies that will just run through your system. Maybe the Paleo diet would work for you?
 

The only thing you can do yourself is some very basic simple things that might not even work. I would try extra B complex vitamins and drink a sports drink like gatorade through out the day(I've found them to constipate me if I drink too much) If nothing else they might help replace some lost or unabsorbed nutrients. Also many allergic type reactions are from an immune deficiency. B vitamins are critical because they include 'energy' vitamins and help absorb/metabolize food.

Even if you eat something like popcorn it races through your system?
 
WhatInThe said:
The only thing you can do yourself is some very basic simple things that might not even work. I would try extra B complex vitamins and drink a sports drink like gatorade through out the day(I've found them to constipate me if I drink too much) If nothing else they might help replace some lost or unabsorbed nutrients. Also many allergic type reactions are from an immune deficiency. B vitamins are critical because they include 'energy' vitamins and help absorb/metabolize food.

Even if you eat something like popcorn it races through your system?
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I'm not sure about popcorn because nothing I eat results in a normal B.M. The closest 2 things that I can positively identify as a "slight help" is home-made apple sauce and bananas. Every thing else just results in non-stop diarrhea that is not much thicker than paint.

I have tried and tried to get my PCP to refer me to a nutritionist who specializes in dealing with my kind of problem. But he keeps putting me off. (the way my insurance is set up, a referral from my PCP is required before I can go to anyone else)
 

"I have tried and tried to get my PCP to refer me to a nutritionist who specializes in dealing with my kind of problem. But he keeps putting me off. (the way my insurance is set up, a referral from my PCP is required before I can go to anyone else)"

I wonder if you could talk to a Nutritionist and have them ask your PCP for a referral? Is that ever possible?-I don`t know.
 
Mrs. Robinson said:
"I have tried and tried to get my PCP to refer me to a nutritionist who specializes in dealing with my kind of problem. But he keeps putting me off. (the way my insurance is set up, a referral from my PCP is required before I can go to anyone else)"

I wonder if you could talk to a Nutritionist and have them ask your PCP for a referral? Is that ever possible?-I don`t know.
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If it is not a ridiculous fee ? Perhaps just pay out of pocket ? Peace of mind & or improvement might be well worth the cost.

IMO perhaps PCP's are leery of such a referral for fear that they might actually help ? As such , drive patients away....could be said as protecting their bottom line...so-to-speak.
 
Good news. For the first time in many months I have had a full day without the runs, and a normal B.M. Something is beginning to work. Perhaps, hopefully, it is the L-Glutamine or the probiotics or the bananas or a dramatic reduction in DIET sodas and switching to iced tea with regular white sugar. Perhaps a combination of all 4.

Perhaps it is something I did not eat. Though I have no idea what that might be.
 
YAAAAAAY!!!! My guess would be the dramatic reduction in diet sodas. Some of those additives are pure poison for some people. And probiotics can`t hurt either....
 
Traveler said:
Good news. For the first time in many months I have had a full day without the runs, and a normal B.M. Something is beginning to work. Perhaps, hopefully, it is the L-Glutamine or the probiotics or the bananas or a dramatic reduction in DIET sodas and switching to iced tea with regular white sugar. Perhaps a combination of all 4.

Perhaps it is something I did not eat. Though I have no idea what that might be.
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That's good to hear Traveler! It's hard to pinpoint what is helping, but it's been around a week and a half since you started the Glutamine, so it just might be working. Even if it isn't responsible for the normal BM, it's worth continuing because it's so healing to the GI tract. You'll likely need a combination of things to remedy your condition, and it looks like you're on the right track!

Research now shows that glutamine supplementation can safely and effectively protect against and repair the damage caused by H. pylori. Glutamine is the single most prescribed ulcer medication in Asia.

Glutamine plays an important role in strengthening the lining if the gut. With the many chemicals the human stomach is exposed to these days, there is a good chance your gut may require some maintenance and repair. Gut health is necessary and essential for overall health and well being.

Even serious gastrointestinal and digestive diseases such as Crohn's, IBS and Colitis can see substantial improvement with glutamine supplementation.

Glutamine supplies fuel for fast multiplying cells, such as those in the gastrointestinal systems. Many of the drugs used to treat these diseases only mask the symptoms, while causing serious side effects. On the other hand, there are studies in which patients of these diseases have seen nearly complete recovery with glutamine supplementation alone.

Glutamine is also useful for treating diarrhea, as it decreases loss of electrolytes and water from the small intestines. Glutamine's role in the health and healing of the gut and intestines is unparalleled.
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It sounds to me like you've got C diff my dh had that it takes a certain antibiotic to get rid of it, and now he takes a Probiotic every day just to be sure he has a healthy intestinal/bowel system, he got c diff from an antibiotic, that he never should have been prescribed, it killed all the healthy bacteria that is needed in the bowel system.
Anyway if you go 8/10 times a day and get stomach cramps and more, you may have this and it's contagious as well (the spores) often hit's folks in the hosp.
Read about it here: https://www.mayoclinic.org/diseases-conditions/c-difficile/symptoms-causes/syc-20351691
 
My wife has the same symptoms. Has had every test there is, none of them remarkable or offering a clue so they've put her diagnosis down as IBS-D and it can be quite debilitating. If she needs to go somewhere she plans it a couple of days ahead. Very little eating the day before, no eating the day of. Then of course when she starts eating she'll get a severe flare up that could last a couple of days. Most Meals usually within minutes of finishing she runs to the bathroom a couple of times at least.

She hasn't been out to a restaurant in years, we don't travel, just going to get groceries can be a challenge for her.

She has tried every herbal, holistic remedy going with no results. She's tried anti depressants that are an apparent off label use for it with no results and anti spasmodics again with no results. There have been some new medications released for it but the side effects that she gets are just as bad, severe constipation.

So she makes the best of it. We've adjusted our retirement and lifestyle for it. Certainly not the best outcome but we're optimistic that something will eventually give her some relief. The internet is great tool for researching.
 
Aputernut17, C. Diff has been ruled out. I did have it in the Philippines 10 years ago but it was cured. I was tested 3 weeks ago for it and the test came back negative.

James, what med gave your wife constipation ? I'd dearly love to know because nothing has worked for me.
 
Something new is happening and it is not good. Beginning about a week ago I began to have very minor abdominal pains. Each day since then the pain has increased. I can still handle the pain but it is increasingly stronger and if I push on my abdomen the pain is quite sharp. There is no specific location, it hurts where ever I push.
P.S. appendix and gall bladder have long since been removed, so it can not be either of those. I hate to go to the doctor and complain 'cause I don't want him to think I'm whining. Not sure what to do. maybe it will go away on it's own.
 
Stay away from artificial sweeteners. If you must have sweetened beverages, use just plain old sugar. Why? Because your body knows what to do with sugar; it doesn't know what to do with artificial sweeteners, so to put it simply, your body just says oopsy-daisy, let's get rid of this stuff ASAP!

Same thing goes for the "artificial fats". Body says "what the hell is this stuff????" and rejects it. Unpleasantly.
 
Have you had your Pancreas checked, I had pancreatitis and it is terrible and gave me my first ever hosp. stay for a week in my 70's never had been in the hosp. before this attack nor had a Dr., before this, talk about painful... OMG! also found out you can actually die from this, I certainly never want to have this again. Plus not one Dr. had an answer as to what causes this, it simply happens to some people similar to the way some get appendicitis and many do not.
 
Traveler said:
Something new is happening and it is not good. Beginning about a week ago I began to have very minor abdominal pains. Each day since then the pain has increased. I can still handle the pain but it is increasingly stronger and if I push on my abdomen the pain is quite sharp. There is no specific location, it hurts where ever I push.
P.S. appendix and gall bladder have long since been removed, so it can not be either of those. I hate to go to the doctor and complain 'cause I don't want him to think I'm whining. Not sure what to do. maybe it will go away on it's own.
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Traveler, go to the doctor.
 
Aputernut17 said:
Have you had your Pancreas checked, I had pancreatitis and it is terrible and gave me my first ever hosp. stay for a week in my 70's never had been in the hosp. before this attack nor had a Dr., before this, talk about painful... OMG! also found out you can actually die from this, I certainly never want to have this again. Plus not one Dr. had an answer as to what causes this, it simply happens to some people similar to the way some get appendicitis and many do not.
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I do not recall that the pancreas has ever been checked. I do have type-2 diabetes but it is very well controlled. When you had your episode, was the pain localized or was it all over the entire abdomen ? My pain, is all over the abdomen, especial lower.
 
Traveler said:
Something new is happening and it is not good. Beginning about a week ago I began to have very minor abdominal pains. Each day since then the pain has increased. I can still handle the pain but it is increasingly stronger and if I push on my abdomen the pain is quite sharp. There is no specific location, it hurts where ever I push.
P.S. appendix and gall bladder have long since been removed, so it can not be either of those. I hate to go to the doctor and complain 'cause I don't want him to think I'm whining. Not sure what to do. maybe it will go away on it's own.
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I agree with the others, it's best to go and get checked out by the doctor and don't worry about his thinking you're whining, it's their job to listen to all concerns, that's what they get paid for.
 
SeaBreeze said:
I agree with the others, it's best to go and get checked out by the doctor and don't worry about his thinking you're whining, it's their job to listen to all concerns, that's what they get paid for.
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I contacted the doctor. He is referring me to ANOTHER G.I. "specialist". I don't have much hope that he will do anything for me.
 

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