Difficult situation with elderly in-laws living out of state and dealing with their dementia

I'm so glad you got to be with this special person...how nice to play his music for him. I'm sure he was comforted by you all, Bob. It's not easy to go through these things. Be good to yourself. Please accept my sympathy to you and your family during this sad time.

:rose::rose:
 

Bob, my condolences to you and your family...hugs. Sending warm thoughts your way, and wishing the best for your wife and mother in law.
 

Grief sucks! I've not experienced it in many years, but I forgot how heavy this feeling can be. Sleep has been difficult. We buried my father-in-law yesterday. I spoke at the gravesite and decided to do so in the form of a letter I wrote to my grandchildren, who will never know this man. I told them about the qualities that made him special in the eyes of so many. My sister-in-law and her husband also spoke amidst their tears. We spent the day at her house, receiving lots of hugs and condolences and eating LOTS of delicious food. I keep telling my wife this will pass, that it will take time, but eventually life will return to normal. We're checking in with my mother-in-law, who seems to understand that her spouse is gone. Eventually she will be up here in MA with us. My wife is going to view the place with her sister later this week.

Thanks again for all the support and kind words. They do mean a lot.
 
You've handled this all magnificently Bob and also touched my heart. May comfort and grace be bestowed onto you and the family. May the new year bring happiness to you all.
 
Bob, grief is a heavy load...but one thing we learn about life..it goes on. How wonderful you've family to talk to and share this with. I wish you happier days ahead and admire your determination to honor this fine man.
 
Bob, it really is one day at a time. I am so sorry for the passing of your father-in-law, and the pain you and your family must go through. I learned that as long as I still have conversations with them, (my sons and husband), in my head, they're still here. And I think that as long as I need them they will be here for me. Maybe this thought will help your wife.
 
Bob, I really like the idea that you honored him at his funeral in the form of a letter to your grandchildren, very thoughtful and special. Grief is difficult, but I know with time the sorrow will lessen for you and your wife. I'm glad your mother in law will be near you soon, you're a good son in law. :love_heart:
 
I would just like to say a quick thank you to all who extended condolences. My wife is doing much better, as is her sister. One of the things I spent time doing this past weekend was making a slideshow of photos of my late father-in-law. I took many photos of him over the years and scanned others I found in his condo during a visit last winter. I organized them into a chronological slideshow and set them to a perfect piece of music. Oh my, I was not prepared for the reaction it evoked when I watched the finished product. It was one of those things where I wanted to do something for my grandchildren and my son, and I'm so glad I did this. A good way to know this special person. It's weird. It hurts, but it's joyous in that it celebrates his life and captures his wonderful expression.

My mother-in-law sometimes forgets that her husband is gone, calling out to him. My wife had to remind her mom that he was gone earlier today. We'll be bringing my MIL up north as soon as possible.
 
Sorry about what MIL is experiencing, it will abate to a degree at some point, she's lucky to have you and your wife. It's good to hear that your wife and SIL are doing better. The project for the grand-kids sounds like a great work you put together though it evoked so many emotions for you and I do hope you are caring for you as well, while doing so much for everyone else.
 
Bob, the slideshow set to music seems like the perfect loving tribute to him, you're very thoughtful. Hoping your mother in law copes with her loss as well as possible, it's good to have family like yours to help her through all this.
 
I thought I'd update this thread for any who have followed it in the past. My wife is doing well in the aftermath of her father's passing, but her younger sister continues to struggle with bouts of grief from time to time. This weekend finds my sister-in-law back in FL to check in on her mom. I felt so badly for her when she told us about a breakdown she had had upon checking into the same hotel where she was the night my FIL passed. Each of us heals in our own time and not according to any schedule.

The update from her this morning was not encouraging as my mother-in-law has faded further into dementia. She's barely eating or taking fluids, which also means she is not getting the meds prescribed. There are some moments of recognition, but they seem to be fleeting. Much of yesterday her eyes were closed, or she wouldn't speak at all. It may be time to explore hospice. My MIL told a psychiatrist the other day, (we were participating via phone) that she wants to die.

It is difficult being far apart at this stage of our lives. My wife alternately feels guilt about not being with her mom, but also feels that visits ultimately don't benefit her mom. The weekend caretaker said something to my SIL last night that made her feel guilty for not visiting sooner in the aftermath of my FIL's passing in late December. I think it was awful for the caretaker to do that.

It would seem that my MIL is nearing the end of her time, and while it will be sad, it will also be a blessing that her suffering is over. It's no way to live.
 
I hope your wife and SIL don't get caught up in guilt over "shoulda, woulda coulda" stuff at this sad time. I think it's important that we all generally do what we think is best in difficult family times, and there's always something we can look back on and wish we had done it differently, for whatever reason. However, as the old saw says, hindsight is always 20/20.

And I think it is important to remember that we all grow old and die, and we can't hold back that tide, no matter what we do. I think your wife's assessment that visits didn't ultimately benefit her mom is probably right on, and that caretaker shouldn't have said such a thing to your SIL.

We used to visit an old family friend in her nursing home when she was suffering from senile dementia, and no, the visits didn't help her. If anything, they disturbed and upset her -- she didn't even know who we were or why we were there, and that upset her terribly (and us, too). We stopped going.
 
Bob, I agree with Butterfly, the caretaker was totally out of line. Obviously no personal familial experience of such a difficult situation. As a family you have done, and continue to do, the very best you can with love and compassion. What else is there? Saying goodbye as gently as you can. Hugs.
 
Dear friends, I thank you for your kind words of encouragement, understanding and wisdom. I find myself awake at this late hour wrestling with the situation and beating myself up. We had a long phone call from my SIL who remains in FL. My MIL's primary care doctor agrees that hospice should come in to do an evaluation. My SIL told us that her mom is wasting away (won't eat and barely drinks) and thinks she has little time left. My MIL, in moments of lucidity, has said things in the past day that suggest she wants to say goodbye and apologize if she ever did anything to hurt my wife (which did on several occasions in years past).

My wife now feels compelled to fly down to FL and wants me to accompany her. The practical part of me instantly recoiled at the expense of my joining her. She of course wants me there to support her (and I understand that). So now I feel like a complete jerk for thinking of this as a monetary decision, when I should be saying "Of course I'll join you, the cost be damned." We can afford this. It's a couple thousand at most. And as I sit here sorting all this through, waiting for the sleeping pill to work its magic, resenting another trip to FL, I'm beating myself up for not being more understanding and just accepting that this is what we do for family. I feel cold-hearted. In the end, I know we'll end up going down, perhaps for the final time, but likely not. Maybe I'm just raging about something that's out of my control. An old ethics professor once told me, sometimes the most ethical choice is the one we least want to undertake. This sucks.
 
Bob, one of the things I hate most about being an adult is that sometimes there are no good choices, often not even clear -cut
right choices, merely the choices we can live with. It would be odd if your emotions were not all over the place. That is

completely normal in this situation. Please cut yourself some slack, and allow yourself to be human. Clearly your mother in law has made her peace with death, it remains for you and the rest of your family to be there for her in whatever way you can. Dying can be a messy, drawn out, painful business. We all process loss, present, and anticipated, differently. That is ok too. Clearly, you are doing your very best to cope. Hugs. :love_heart:
 
Bob...I understand your dread..but in the end you are right to be there for your wife. That's the most important thing..and you'll have a better night's sleep knowing you did what you needed to do despite your hesitations. Hang in there.
 
Long chat with my SIL today. Hospice visited and we've moved my MIL into their care, but she will be at home during this period. Doctor signed off, saying that my MIL is in a terminal state. Talking to my wife about taking an extended trip down to FL to be with her, driving our new SUV down there and maybe renting a condo nearby. No question we have to go there, the question is how quickly. After today's talk with my SIL, things seem less emergent, so may go next week. Thanks again for all your advice and good wishes.
 
Just a quick update for anyone following this thread. We did indeed drive down, taking three days to do it in the new car, going from Massachusetts to Florida. An interesting experience, if tedious journey. Driving through the outskirts of DC at night in the rain is not for the faint of heart, especially when you don't know the roads. What a horror show.

We stayed in a newly opened TownPlace Suites in Boynton Beach, FL. Have to say, some of the best all-around accommodations we've stayed in for long-term visits. Got a king suite, with a separate living room. Highly recommended. Clean, spacious, quiet and you can cook in the room.

Anyway, we have been at my mother-in-law's condo every day for at least six hours. She is frail, but eating. Her dementia has increased and ranges from stone silence to violent rages against everything, from weeping and sobbing to talks of suicide. Then there is the fear. She is afraid of everything it seems. The short-term memory is rapidly diminishing. There have been some occasional moments when she is somewhat rationale and understands what we're saying, but those moments are few and far between. Yesterday she was raging against Mexicans for some reason (an no, she's not a Trump supporter). I went in to her room and calmed her, getting her to focus on something else, at which point she calmly announced that she'd probably die in "four or five hours". Each day is like this.

To fill the time, my wife and I have set out to go through my late father-in-law's closet, a small walk-in unit where he not only kept his clothes, but decades of slides, photos, brochures, maps, political memorabilia, newspaper articles, old magazines, cards, letters, cameras, video tapes, cassette tapes, etc. We boxed up all his clothing to give to charity, then started going through the papers. Oh what a task! My late father-in-law was a meticulous hoarder of things, many of which were labeled, but most of which were just stuffed together in every nook and cranny of the closet. I kid you not, I filled 1/3 of a dumpster with box after box of old VHS cassettes. There were hundreds of them that he had recorded. We saved the family ones, but threw away the rest. Same with the cassette tapes.

There was gold in this exploration, some laughs and some heartbreak. Yesterday I started digging into the drawers of the closet, again stuffed with all kinds of folders and found a large one wrapped with a cord. The folder contained all the materials relating to my wife's late sister's tragic accident which ultimately led to her death. She had been horribly burned in a massive propane explosion at a construction site when she was just 18. In the folder were her charred personal effects, including her notebook and wallet, some very graphic photos showing the burns, letters to the lawyers, newspaper accounts and such. My poor wife. Oh how she sobbed upon seeing these things. She felt compelled to go through it, because her father had never showed her these things or even told her that they existed.

On a lighter note, we found cassette tapes of family gatherings and video tapes of events that will have meaning for us. And, we have an old VCR that still works and an old 8 mm video tape camera for the smaller tapes so we can play these one day.

My sister-in-law is finding it too painful to go through her dad's things, let alone go into his old closet. It was his version of a "man cave". He'd retire there and type out letters to friends and relatives (saving a copy of each one!) for hours on end. So to clean out the space is like slowly erasing a part of him from our lives. It's a weird exercise, but fulfilling in its own right. It feels somehow good to be doing this, moving on and preparing for when my mother-in-law passes. I'm sure she doesn't have long, but who knows. The poor woman has no quality of life and she wants to die. We're just hoping nature takes its course sooner than later so she can be at peace.

Time to head over for one more day of sorting through the closet, separating the "must save" from the "must toss" things. The journey continues for one more day, before we start to make our way back home. I think we'll take more time on the way back and get some much needed R&R time just for us. We have a week's worth of clothing with us, so may as well take advantage of the fact that we have our own car and can go anywhere we want.
 


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