Not that anyone is asking

hollydolly said:
I honestly can't tell you a lot tbh Frank. ..because I simply don't know too much. My M-I-L was diagnosed very early in her 30's by the time my husband was 15 she was permanently wheelchair bound... he never questioned her or his father as to how or why it could have happened, just accepting it as a fact ( he's like that in life)... she's since died from the complications of it, but not until she was in her 60's... but from what I understand she had the same type as my eldest brother .. which is Primary Progressive MS ( PPMS)

My brother is someone whose always lived on his last nerve, caused by Trauma in his childhood ( before I was born) and has had a pronounced and severe stammer all of his life.
At around his mid 40's, ( he's now in his 70's) he started experiencing blurred vision as well as poor colour vision which meant he had to wear sunglasses at all times , deep tiredness, and bouts of dizziness which meant he had to stop driving for a living.. ..once he was diagnosed , he went through a period of deep depression, and further symptoms, but he;s never used a wheelchair like M-I-L, altho' his various symptoms come and go, bowel problems. tight torso pain.. he's pretty much stabilised.. and has bad and good days..


That's good info. Thank you, Holly​

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Pinky said:
Frank, my nephew's wife has had MS since her late teens. She is now in her mid-40's. I know that, about 5 years ago, she bought a cane .. just in case she needed it. However, I think she rarely uses it. She is still working at the research lab, as far as I know. There is now very good medicine for MS patients.
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That all fits with what I learned about MS a few yrs ago from an online journal by a guy who was diagnosed with it, and from that bio-movie about Steven Hawking. MS does progress slowly. Also, most patients get it at age 30 to 40, and most are men.

Pinky, I did not know it can be treated with medication. (y)
 

RadishRose said:
@Murrmurr , please don't panic. Some doctors are rather alarmist in attempt at caution. Steady on my dear!
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Fortunately, I never really panic. But I have been running some worst-case scenarios through my head.

Worth noting, this doctor is an eye-doctor; an optometrist. So yeah, he was alarmed, and maybe a bit over cautious, but he probly doesn't often hear the kind of symptoms I rambled off at him. I'd wager most people prefer over-caution to complacency. And if it turns out the "real" eye doctors find a problem, I'm gonna be mad at my spine doc, bc I've told him about a lot of these symptoms a number of times. He has tunnel vision; sees your spine, and that's it.

Michelle would panic.
 

This doctor you saw is not a specialist in his field. They are okay to prescribe glasses, etc but not to treat eye diseases or problems. You need to see an ophthalmologist asap. With my brain problems I have been advised to always see the specialist for my eyes and not an optometrist. MS was one of the diseases I was thought to have right before I was correctly diagnosed with a brain aneurysm.
 
I have never had a problem with my eyes that required a specialist. My husband at one time had a problem, started with the GP, next to the opthamologist, then onto a eye specialist. After all these doctors he was diagnosed with Ptergium, I think I spelled it right. When he was young he worked in the pool business. The problem was caused by eye damage caused by the sun. The ptergium were growths on the eye from sun damage. He had to have surgery on both eyes to have them removed. That took care of the problem. Much later we had to deal with the skin cancer that took his life.
 
terry123 said:
This doctor you saw is not a specialist in his field. They are okay to prescribe glasses, etc but not to treat eye diseases or problems. You need to see an ophthalmologist asap. With my brain problems I have been advised to always see the specialist for my eyes and not an optometrist. MS was one of the diseases I was thought to have right before I was correctly diagnosed with a brain aneurysm.
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Yes, the optometrist made 2 referrals, one to an ophthalmology specialist, one to the Eye, Nose, Throat group. Both of them called already, so I have 3 appointments next week incl one with radiology. So I'm sure we'll get to the bottom of what's up with the bottom of my eye pretty quick.
 
Saw the ENT guy yesterday. I got the All Clear.

In fact, he stuck a little camera up my nostrils and I see could the inside of them on a monitor...and they were very clear, as in nice and clean. I said "Oh wow, look how fastidious I am." I mean, if you can't have a little fun while someone's cramming a camera up your nose, then, what kinda world, right? Then I noticed this tiny internal flap move when I closed my airway, like you would when you go underwater, and I said "Hey! Look what I can do!"

In the After Visit Summary, the guy made a note: "66yr-old male pt, suffers vertigo and giddiness"

Giddiness? Giddiness? Because I was joking around? Using a word like "giddiness" in a 66yr-old patient's medical notes can trigger a social worker in the mental health department. That word's gotta go. I'm gonna tell his office to have it omitted. It's got nothing to do with my ears, nose, and throat anyway. sheesh
 
Murrmurr said:
Saw the ENT guy yesterday. I got the All Clear.

In fact, he stuck a little camera up my nostrils and I see could the inside of them on a monitor...and they were very clear, as in nice and clean. I said "Oh wow, look how fastidious I am." I mean, if you can't have a little fun while someone's cramming a camera up your nose, then, what kinda world, right? Then I noticed this tiny internal flap move when I closed my airway, like you would when you go underwater, and I said "Hey! Look what I can do!"

In the After Visit Summary, the guy made a note: "66yr-old male pt, suffers vertigo and giddiness"

Giddiness? Giddiness? Because I was joking around? Using a word like "giddiness" in a 66yr-old patient's medical notes can trigger a social worker in the mental health department. That word's gotta go. I'm gonna tell his office to have it omitted. It's got nothing to do with my ears, nose, and throat anyway. sheesh
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So thrilled for you, that's wonderful news.
 
Tish said:
So thrilled for you, that's wonderful news.
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Yep.

Tomorrow I go to the eye-sinus specialist. She'll try to find out what's causing the burning pain in my left eye (which is really bad tonight, and I can't sleep). And then, next week, I'm scheduled for a CT scan of my brain and optic nerve, and an MRI of my orbital-nasal sinus cavity. I hope they find the problem. I'm getting to where I can't handle this incessant eye burn. Feels like there's a tiny hot ember behind my lower eyelid. So, so annoying.
 
I am glad they are thoroughly and promptly investigating, and looking to rule in or out, various possibilities, that the original doctor couldn't.

Hopefully, that one labeled the referrals as urgent, because you're in pain, and because it would be a very distant future appointments, if it was labelled otherwise, rather than that it turns out to be most serious scenario.

At the least though, I hope they will figure it out (soon) and have an effective treatment plan for you.
 
Kaila said:
I am glad they are thoroughly and promptly investigating, and looking to rule in or out, various possibilities, that the original doctor couldn't.

Hopefully, that one labeled the referrals as urgent, because you're in pain, and because it would be a very distant future appointments, if it was labelled otherwise, rather than that it turns out to be most serious scenario.

At the least though, I hope they will figure it out (soon) and have an effective treatment plan for you.
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What's the plan?
 
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Interesting when using Look Up here giddiness says dizziness. I never thought of it being synonymous.
 
Jules said:
One doctor visit down and a few more to go. At least the first one didn’t find any issues.

Giddiness - he didn’t like your sense of humour, or maybe he really did. Strange comment.
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I went to see the eye specialist today. My optic nerve was tested; no lesion. My retinas were examined; perfectly normal. But I'll tell you what, there is no humor in that whole department!

So far, everything looks fine. Tomorrow I'll have a hearing test (mainly because I had to keep asking everyone in the No-Humor Dept to speak up), and next Friday the brain scans.

The eye specialist said I have very severe dry eye. I stopped on the way home and picked up some ...um... crap, forget what it's called but it's basically fake tears. My left eye still burns a bit but not nearly as bad after a few treatments. She said to do 1 or 2 drops 5 times a day, to gently wash my eyes (not eyeballs) with no-tears shampoo once a day, and use a warm compress 3 times a day. She asked me about my A/C at home and in my car. I guess they can cause severe dry eye.

That'd be so cool if that's the whole freaking issue.
 
Murrmurr said:
I went to see the eye specialist today. My optic nerve was tested; no lesion. My retinas were examined; perfectly normal. But I'll tell you what, there is no humor in that whole department!

So far, everything looks fine. Tomorrow I'll have a hearing test (mainly because I had to keep asking everyone in the No-Humor Dept to speak up), and next Friday the brain scans.

The eye specialist said I have very severe dry eye. I stopped on the way home and picked up some ...um... crap, forget what it's called but it's basically fake tears. My left eye still burns a bit but not nearly as bad after a few treatments. She said to do 1 or 2 drops 5 times a day, to gently wash my eyes (not eyeballs) with no-tears shampoo once a day, and use a warm compress 3 times a day. She asked me about my A/C at home and in my car. I guess they can cause severe dry eye.

That'd be so cool if that's the whole freaking issue.
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Hopefully you will feel better soon.
 
If you’re on Facebook, there’s a group dedicated to dry eyes. They’re in worse condition than I am, but I still read their ideas.

Because of all my other eye problems, I do the things that your specialist recommended today - the baby shampoo, the drops, the compress, etc. I have a compress that goes in the microwave; it stays hot longer than a hot wash cloth. Also I take 2200 mcg of Omega 3 from a fish source. At night I‘m trying an ointment that the doctor likes. Has anything helped me? I don’t know but as the doctor said if I quit I might find out that it really was.

Sometimes I use an eye cup to wash my eye if it feels like there’s something in it. Do you remember these?
 
Jules said:
If you’re on Facebook, there’s a group dedicated to dry eyes. They’re in worse condition than I am, but I still read their ideas.

Because of all my other eye problems, I do the things that your specialist recommended today - the baby shampoo, the drops, the compress, etc. I have a compress that goes in the microwave; it stays hot longer than a hot wash cloth. Also I take 2200 mcg of Omega 3 from a fish source. At night I‘m trying an ointment that the doctor likes. Has anything helped me? I don’t know but as the doctor said if I quit I might find out that it really was.

Sometimes I use an eye cup to wash my eye if it feels like there’s something in it. Do you remember these?
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My mom used an eye cup. And I remember her boiling it between uses. I thought, "Man, my mom must be old....she has to use a boiled eye glass."
 
Jules said:
If you’re on Facebook, there’s a group dedicated to dry eyes. They’re in worse condition than I am, but I still read their ideas.

Because of all my other eye problems, I do the things that your specialist recommended today - the baby shampoo, the drops, the compress, etc. I have a compress that goes in the microwave; it stays hot longer than a hot wash cloth. Also I take 2200 mcg of Omega 3 from a fish source. At night I‘m trying an ointment that the doctor likes. Has anything helped me? I don’t know but as the doctor said if I quit I might find out that it really was.

Sometimes I use an eye cup to wash my eye if it feels like there’s something in it. Do you remember these?
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Oh....no, I don't have Facebook, but maybe there's an online group or something.
 

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